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Sheila Lamisere

One of the things I most appreciate about the Association are the opportunities given to volunteers to extend our knowledge of the disease, current research and developments in care, through publications and conferences.

Sheila Lamisere

It could have been kidney disease, MS, fibromyalgia, muscular dystrophy: MND was just one of the diseases about which I knew practically nothing, so there was no very good reason for me to get involved with the MND Association rather than one of the many others working for equally worthy causes.

But there it was: an advertisement for a group secretary on the Reach website just as I was looking for a new volunteering challenge, and commitment was just a click away…

Working with a support group committee has meant getting to know some lovely fellow volunteers, and meeting people living with MND and their carers.

One of the things I most appreciate about the Association are the opportunities given to volunteers to extend our knowledge of the disease, current research and developments in care, through publications and conferences, and this has led me to become involved more closely by becoming an Association visitor.

I am grateful also for the care and support the Association offers to volunteers whom it clearly values. I still don’t know much about the other illnesses I mentioned, but feel I now have not only a fair understanding of MND but an appreciation of the courage, optimism and determination to live life to the full that so characterise those living with this dreadful disease.

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