Many of those attending the first meeting are still very much involved in the Association.

Attending that first key meeting were:
Martin Anderson, Peggy Berrie, Jenny Carus (now Elston) Roger Carus, Ann Gretton, John Prince, Joyce Prince, Jim Tew, Malcolm Spender, Kathy Tither and Judith Kennedy.
Professor Stephen Hawking agreed to become a Patient's Patron, with Consultant Neurologist Dr Frank Clifford-Rose Medical Patron and Lady MacNeil, whose husband Sir Hector had died from MND as Honorary President.