Founder member Colin de'Ath talks about how far the Association has come over the last 30 years.
May the Association's progress hasten the day when a cure is found.
When I was diagnosed with MND in 1978 it was virtually unknown outside the medical profession, even to some GPs. Patients felt very alone and isolated. When the Association was formed it was like a life-line for people. For the first time we could meet and talk to other patients and families in similar circumstances. It gave us all hope and valuable information.
I had found out about the consequences of MND from my local library. Consequently, I was very eager to get involved and spread the word so that new patients were advised in the correct way. It is vital, especially immediately after diagnosis, that new patients receive all the help, support and information available to them.
I joined the MND Association in July 1979, three months before we became a charity on 6 October 1979, so I have seen all the many marvellous advances. I was able to offer my support in a small way by being elected to the first National Committee in May 1980.
Fortunately, I am still able to support the Association as an Association Visitor and fundraise for my local branch. I congratulate the Association on its 30th Anniversary and what it has achieved. May its progress continue to hasten the day when a cure is found for this most distressing of all diseases.