The new Just In Case Kit (JIC Kit) was originally known as the Breathing Space Kit (BSK) and was introduced after working closely with GPs community nurses, palliative care specialists and other professionals. The use of the kit is regularly monitored and evaluated so that recommended improvements in management can be made to the benefit of people living with MND.
I would just like to express my appreciation of the MND Association's Breathing Space Kit [now called the Just In Case Kit] and say how beneficial it was to both family and nurses involved..... When I received a frantic 'phone call from the family I was able to administer the medication without delay, and the patient was able to settle immediately.
The kit and accompanying leaflets are provided to a GP free of charge on request. We suggest a range of medications to be kept in the box to alleviate symptoms such as breathlessness, choking or related panic which may occur during the course of the illness.
Although most people will never need to use a JIC Kit its presence in the house will bring confidence and reassurance to all.
The JIC Kit should be seen as part of a framework of holisitic care for the person with MND and while appropriate for emergency use further thought and discussion may be required in providing medication on a more continuous basis ie through a syringe driver.
We would also recommend referal to local specialist palliative care services.
At the time of providing a JIC Kit you may also find that people want to talk more openly about dying. Two leaflets have been produced to help with these discussions. Death and dying (88 kb) aimed at professionals and How will I die? (178 kb) aimed at people affected by MND.
If you would like to discuss the use of the JIC Kit please contact the MND Connect Team on 01604 611870