Frequently asked questions

To recognise the unique role of the GP from diagnosis to death

• What is the role of the GP?

To be alert to the diagnostic possibility of people presenting with a chronic degenerative neurological disease

• What signs and symptoms would suggest a referral to the neurologist?
• How does MND present?
• How is MND diagnosed?
• What differential diagnoses need to be considered?

To remain in supportive contact with patients and their families and carers

• What will patients be told on diagnosis?
• Can MND be familial?
• Is depression a common symptom?
• Is mental capacity an issue in MND?
• Is there a specific treatment for MND?
• What support and information is available?

To monitor and control their symptoms as effectively as possible using the skills of other health and social care professionals, as and when appropriate, and to co-ordinate their contributions

• How does increasing muscular weakness and wasting affect the patient?
• How can speech and/or swallowing be affected?
• Do patients experience difficulty managing secretions?
• When should gastrostomy be considered?
• How does MND affect the respiratory system?
• Do patients experience incontinence problems?
• What is the role of the Multi-disciplinary team (MDT)?
• When should palliative care services be involved?
• What other additional reading is available?