Information Resources

A number of useful printed resources are available for professionals working with people affected by MND.

"Many thanks for the excellent information. As well as using it in my workplace I will also be able to use it for my own professional development while increasing my knowledge about MND."

RMN, RGN

Good quality, practical information is essential for professionals involved in the care of people with MND. By taking steps to ensure that everyday problems are well-managed a vast improvement can be made to the individual's quality of life. A range of publications are available including:

MND Resource File: A patient and carer centred approach for Health and Social Care Professionals

MND Association Resource File log

Aims to assist professionals by encapsulating key issues relating to the successful multidisciplinary management of the disease in an easily accessible format. Areas covered include:

  • The Disease
  • Movement and Mobility
  • Personal Care
  • Speech and Communication
  • Nutrition and Dysphagia
  • Psycho/Social issues
  • Respiration
  • Palliative and Terminal Care

The A4 binder with loose leaf format, for easy updating and room for personalisation, is a key resource for all professionals seeking to achieve the best possible quality of life for people affected by MND.
Price: Binder £12 and CD Rom £20 (inc P&P)


Just In Case Kit

Just in case kit and GP booklet

This was originally introduced as the Breathing Space Kit (BSK) by the MND Association in 1991 and was comprehensively revised and updated in June 2003. The new Just In Case Kit (JIC Kit) replaces the BSK and aims to address sudden change in the person with MND – in particular choking, breathlessness or related panic, which may occur during the course of the illness, and the fear of dying.


Further information

If you would like further information, or to request a copy of any of our Information Resources, please contact MND Connect on 08457 626262