-
Get involved
-
Donations
-
Membership
-
Fundraising
-
Volunteering
-
Consider leaving a gift in your will
-
Campaigning / Influencing
-
National Campaigning
-
National Service Framework for Long-Term Conditions
-
Assisted Dying For the Terminally Ill Bill
-
All-Party Parliamentary Group on MND
-
NICE appraisal of riluzole
-
Welfare Reform Green Paper
-
AA/DLA Information Bill
-
Mental Capacity Act 2005
-
Equipment Provision
-
End of Life Care Strategy/ Board
-
Disabled Facilities Grants
-
-
Guide to Influencing for Branches and Groups
-
-
Tribute Funds
-
Grant-Making Trusts and Foundations
End-of-Life Care Strategy/ Board
At the end of January 2007, an advisory board was set up to support the development of the end-of-life care strategy for adults. It will provide advice on the strategy, which will ensure choice, quality of care, equity of access and value for money for people across England.
Working groups will make recommendations on a number of specific areas. The working groups will include: measuring the quality of care; the care pathway for someone approaching the end of life and the services required to meet their needs; care homes; analysis and stronger commissioning of services; and workforce and development.
Timetable for implementation
End of July 2007 working group recommendations to the Advisory Board, End-Of-Life Care Strategy drafted September/ October 2007 and published in December 2007.
What the MND Association has done
Tricia Holmes, Director of Care Development, has been invited to be on one of the working groups, Care Pathways and Service Models, which will feed into the main Board. This means that the Association will be able to have a direct influence in its development. We have provide a written response to the End-of-Life Care Strategy.
Timetable for implementation
End of July 2007 working group recommendations to the Advisory Board, End-Of-Life Care Strategy drafted September/ October 2007 and published in December 2007.
What the MND Association has done
Tricia Holmes, Director of Care Development, has been invited to be on one of the working groups, Care Pathways and Service Models, which will feed into the main Board. This means that the Association will be able to have a direct influence in its development. We have provide a written response to the End-of-Life Care Strategy.
