Regional Care Development Advisers are experienced professionals with a background in health or social care. On average, they each cover an area of approximately 2 million population
The role of the Regional Care Development Adviser
1. To work with local health and social care staff to improve the services for people with MND and their families locally
2. To educate and raise awareness about MND by, for example, organising training and study opportunities for health and social care staff, and working with managers to influence the way services are provided
3. To ensure that people with MND and their families receive support and information they need through Association Visitors (AVs). RCDAs may be able to put people affected by MND in touch with an AV or other local support networks.
4. To offer support and advice to people affected by MND.you are unsure of the RCDA for your area please contact the MND Connect team. We would also encourage you to contact this service if the RCDA is not available.
What you can expect from your Regional Care Development Adviser
• detailed knowledge about Motor Neurone Disease and its effects
• knowledge about health and social services in your area and MND Care Centres
• free and confidential support and advice that is tailored to meet your individual needs at the time you request it
• knowledge of how the Association can help you
• information about the support that is available in your area by Association Visitors and/or support group meetings
• signposting to other services and other sources of help
• information about other sources of help, advice and support that may be available in your area
• acceptance and respect for your choices and wishes
How to get in touch with your Regional Care Development Adviser
You may directly contact your Regional Care Development Adviser by telephone or email below. Alternatively the Regional Care Development Adviser can be contacted on your behalf by MND Connect or your local Branch or Group contact.
North East - Joanna Thompson
Northumberland, Newcastle and Durham
E'mail: joanna.thompson@mndassociation.org
Tel: 08453 751820
Lancashire and Cumbria - Sal Hastings
Lancashire, South Cumbria, Blackpool
E'mail: sal.hastings@mndassociation.org
Tel: 08453 751841
West Yorkshire - Sue Smith
West Yorkshire and Harrogate (North Yorkshire)
E'mail: sue.smith@mndassociation.org
Tel: 08453 751822
Fax: 0113 267 2393
Cleveland, East & North Yorkshire - Colin Pearson
Cleveland, East Coast, North Yorkshire, Humberside
E'mail: colin.pearson@mndassociation.org
Tel: 08453 751837
Greater Manchester - Chris Lynch
Bolton, Bury, Wigan, Oldham, Rochdale, Tameside, Stockport, Trafford, Salford, City of Manchester. (BL, M, OL 1-16 except 13, 14) SK 1-8, 12-16, WA 14, 15, WN 1-3, 7, 4, 5, 6 shared with Mersey
E'mail: chris.lynch@mndassociation.org
Tel: 08453 751835
Merseyside and Cheshire - Kathy James
Merseyside, Cheshire, Wirral (Not Stockport, UAs Halton (Incl Widnes) & Warrington CH except 5-8, CW, L 1-40, PR 8+9, SK 9-11, WN4-6 & SK12 Shared with GM, All WA except 14 & 15
Tel: 08453 751832
Fax: 0151 298 2333
North Derbyshire, South Yorkshire, Scunthorpe & Grimsby - Jane Evans
South Yorkshire, North Derbyshire, North Lincolnshire and North East Lincolnshire
E'mail: jane.evans@mndassociation.org
Tel: 08453 751821
Fax: 0114 255 7092
Northern Ireland - Helen McClean
Antrim; Armagh; Fermanagh; Londonderry; Tyrone; Co Down; (Postcodes: BT)
E'mail: helen.mcclean@mndassociation.org
Tel: 08453 751852
Fax: 02891 873923
West Midlands (South) - Margaret McIntosh
Warwickshire, Herefordshire, Worcestershire, West Midlands - Birmingham, Solihull, Coventry.
E'mail: margaret.mcintosh@mndassociation.org
Tel: 08453 751846
West Midlands (North) - Jackie Dornford-May
Staffordshire, Shropshire, West Mids. – Sandwell, Dudley, Walsall, Wolverhampton
E'mail: jackie.dornfordmay@mndassociation.org
Tel: 08453 751842
Fax: 01785 254355
East Anglia - Lindsay Goward and Liz Cooper
Cambridgeshire; Norfolk; Suffolk.
E'mail: lindsay.goward@mndassociation.org
E'mail: liz.cooper@mndassociation.org
Tel: 08453 751827 Liz Cooper
Tel: 08453 751829 Lindsay Goward
Thames Valley - Kim Iliffe
Oxfordshire; Buckinghamshire; Milton Keynes, Berkshire (Reading, Slough, Bracknell forest, West Berkshire, Windsor & Maidenhead
E'mail: kim.iliffe@mndassociation.org
Tel: 08453 751854
East Midlands - Jane Connell
South Derbyshire, Nottinghamshire, Lincolnshire
E'mail: jane.connell@mndassociation.org
Tel: 08453 751836
Fax: 01636 642801
Central Midlands - Rachel Boothman
Northamptonshire, Leicestershire and rutland, Bedforshire, Luton
E'mail: Rachel Boothman@mndassociation.org
Tel: 08453 751830
North Wales and the Isle of Man - Kevin Thomas
Powys, North Ceredigion, Gwynedd, Ynys Mon, Conwy, Denbighshire, Flintshire, Wrexham and Isle of Man
E'mail: kevin.thomas@mndassociation.org
Tel: 08453 751824
South Wales - Jenny James
Monmouthshire, Torfaen, Newport, Blaenau Gwent, Cardiff Vale of Glamorgan, Caerphilly, Merthyr Tydfil, Rhondda Cynon Taff Bridgend, Neath Port Talbot, Swansea, Carmarthenshire, Pembrokeshire, South Ceredigion
E'mail: jenny.james@mndassociation.org
Tel: 08453 751853
Fax: 029 2059 8849
South Central - Annemieke Fox
Hampshire, Dorset, Isle of Wight, Channel Islands
E'mail: annemieke.fox@mndassociation.org
Tel: 08453 751831
West of England - Hilary Fairfield
Gloucestershire, South Gloucester, Bristol, North Somerset (postcodes: BA1-3, 12-15, BS 1-49), Bath & North East Somerset, Swindon, Wiltshire
E'mail: hilary.fairfield@mndassociation.org
Tel: 08453 751828
South West - Bill Nevin
Cornwall; Devon; Somerset.
E'mail: bill.nevin@mndassociation.org
Tel: 08453 751844
Surrey and West Sussex - Helen Hawkins
Surrey and West Sussex
E'mail: helen.hawkins@mndassociation.org
Tel: 08453 751825
North and West London - (Vacant)
Barnet, Camden, Harrow, Brent, Westminster, Kensington & Chelsea, Hammersmith, Ealing, Hounslow, Hillingdon, Enfield and Islington
North East London - Frances Carroll
Hackney, Tower Hamlets, Newham, Harringey, Waltham Forest, Redbridge, Havering, and City
E'mail: frances.carroll@mndassociation.org
Tel: 08453 751851
South London- Christine Strohmeier
Kingston, Sutton, Merton, Croydon, Wandsworth, Lambeth, Southwark, Lewisham, Greenwich, Bexley, Bromley, Richmond
E'mail: christine.strohmeier@mndassociation.org
Tel: 08453 751847
Kent and East Sussex - Sara Jane Murray
Kent, including Medway and East Sussex including Brighton and Hove
E'mail: sara.murray@mndassociation.org
Tel: 08453 751849
Hertfordshire and Essex - Liz Pybus
Hertfordshire and Essex including Thurrock and Southend and Enfield North of the M25
E'mail: liz.pybus@mndassociation.org
Tel: 08453 751840
MND Connect
10-15 Notre Dame Mews
Northampton
NN1 2BG
Tel: 08457 626262
Fax: 01604 638289
Email: mndconnect@mndassociation.org
