The following links will help start your search for further information on a range of relevant subjects to MND.
We do not necessarily endorse the organisations listed here and we cannot take responsibility for the content on external websites. However, we endeavour to ensure that websites we link to are a reliable source of information.
www.ableradio.com
Able Radio is a community radio providing a voice for people with a disability or a health condition.
Ability Net
A specialised communications company giving advice on computer equipment and software for people with speech or mobility difficulties.
Apps for AAC
A website designed to help you find independent information regarding the current communication apps out on the market.
British Homeopathic Association
Details and information about homeopathy and practitioners.
The British Medical Acupuncture Society
For advice and therapists in acupuncture.
Build-uk.net
A forum for people affected by motor neurone disease in the UK.
www.cqc.org.uk
The Care Quality Commission is the independent regulator of health and social care in Britain.
Carers UK
Carers UK works to uphold the rights of the many carers in the UK today and provides advice and support.
Changing Places
Campaigning for fully accessibile facilities for disabled people who cannot use standard accessible toilets.
Childline
Advice and support for children, young people and young carers.
Citizens Advice Bureau
CAB prvides advice to help people resolve many problems encountered in everyday life.
Cinnamon Trust
The Cinnamon Trust is a charity for elderly and terminally ill people and their much loved pets.
Communication Matters
An organisation focused on supporting people with communication difficulties through exploring all types of alternative communication.
Compassion in Dying
Support regarding options for treatment and care at end of life.
Counsel and Care
Counsel and Care is a national charity whose aim is to get the best care and support for older people, their families and carers.
Counselling Directory
Provides information on a huge support network of counsellors, enabling people to find a qualified counsellor close to them and appropriate for their needs.
Cruse Bereavement Care
Cruse can provide information and advice to anyone who has been affected by bereavement.
Demand
Design and Manufacture for Disability.
The Department of Work and Pensions
Advice on services and benefits for working age people, families, the retired, and disabled people and their carers.
Direct Enquiries
Direct Enquiries details the disabled access and facilities at tens of thousands of locations across the UK.
Direct Gov
This Government website offers a wide range of public service information, and services, online.
DisabledGo
DisabledGo provides free detailed access information for disabled people across the UK and Ireland.
www.disabledholidaydirectory.co.uk
Holiday information for people with disabilities.
The Disability Alliance
The Disability Alliance provides information on social security benefits and tax credits to disabled people.
Disabled Living Foundation
The DLF offers information on all types of disabled equipment.
Dptac
Disabled Persons Transport Advisory Committee
Dr Babel
Enabling individuals to create a simple medical record online that can be translated accurately into many languages then printed off.
Emergency SMS
Emergency SMS is a service that allows deaf, hard of hearing and speech impaired people in the UK to send a text message to 999.
Expert Patient Programme
The Expert Patient Programme offers free self-management courses for people living with any long-term health condition.
Fashion Freaks
Stylish clothes for people affected by disability.
Forum of Mobility Centres
16 centres offering practical information on car adaptations.
Healthtalkonline
See, hear and read the experiences of people affected by MND and other conditions.
Hospice UK
Website providing information on hospice and palliative care services in the UK and abroad.
ICAS
ICAS or the Independent Complaints Advocacy Service, is a free confidential service for patients of the NHS who are unhappy with the treatment they have received.
Information Technology Can Help (ITCH)
ITCH is a programme of the British Computing Society (BCS). The ITCH Network provides disabled people with effective Information Technology solutions.
Just Mobility
Website for advertising adapted vehicles and mobility products and information on disability products and services.
Lasting Post
Discusses how to plan a funeral and matters arising from bereavement.
Leonard Cheshire
Leonard Cheshire Disability exists to change attitudes to disability and to serve people with disabilities around the world
www.lougehrig.com
The official website of Lou Gehrig the American baseball hero who had his career cut short when he was diagnosed with ALS.
Look after our NHS
Information about how public money is being spent within the NHS
Medecines and Healthcare Regulatory Agency (MHRA)
A government agency within the Department of Health, responsible for ensuring that medecines and medical devices work and are acceptably safe.
NI Direct
The online service for the Department for Social Development in Northern Ireland. The Dsdni) has strategic responsibility for urban regeneration, community and voluntary sector development, social legislation, housing, social security benefits, pensions and child support.
Other MND Organisations
Links to other MND Associations
Open Britain
OpenBritain is a guide book and web site providing information on UK tourism and holidays, for people with disabilities and specific access requirements.
Patientslikeme
Patients helping patients live better everyday
The British Pain Society
Information leaflets and advice on managing pain
Patient Opinion
Your story can change the NHS. Tell people your story and read what happened to them.
The Possum Group
The Possum Group provides up to date technology information in the fields of Environmental Controls and Comunication Equipment.
The British Red Cross
Help with care in the home and the community, transport services and loan of medical equipment
Association of Reflexologists
For advice and therapists in reflexology.
The Princess Royal Trust for Carers
The Princess Royal Trust for Carers is the largest provider of comprehensive carers support services in the UK.
Radar
RADAR is a national network of disability organisations and disabled people.
The Relatives and Residents Association
The Relatives and Residents Association exists for people needing or living in residential care and their families and friends.
Remap
Remap is a charity which gathers together skilled volunteers to produce one-off pieces of equipment where no existing equipment can help.
Ricability
Ricability is an independent consumer research charity providing free, practical, impartial reports of products and services for the disabled and older people.
SpeechBubble
A website that helps you find out about the types of communication aids currently available.
Samaritans
Confidential, emotional support.
TrainTaxi
The guide to taxis serving all train, tram, metro and underground stations in the UK.
Therapy Directory
A website that enables you to seek out qualified alternative and complementary therapists.
Thrive
Thrive is a UK national horticultural charity that promotes the use of gardening and horticulture.
Tourism for all
A national charity dedicated to making tourism welcoming to all.
Turn2Us
Turn2us will help access any money available to people, through benefits, grants and other financial help.
www.wfnals.org
The World Federation of Neurology Amyotrophic Lateral Sclerosis website.
The Wheelyboat Trust
The Wheelyboat Trust is a registered charity which helps people enjoy the waterways of the UK.
Which Hospital Companion
This guide aims to help you find out everything you need to know about going into hospital.
The Willow Foundation
The Willow Foundation is a national charity providing special days out for seriously ill 16 to 40 year olds.
Writing to your MP
This website provides information about writing to your MP, Councillor, MEP and Welsh Assembly members.
Young Carers
Support for children or young people who help to care for someone with an illness or disability. This site is hosted by the Carers Trust.
