A diagnosis of MND is a difficult and sensitive time, but it can also bring financial pressure. Your working life may be affected and you may also need equipment, home adaptations or care services. It is therefore important to explore statutory services and available support as soon as you are diagnosed.
Applications, equipment and services can take time to arrange. In order to avoid delays when help may be needed most, we advise you plan ahead as much as you can.
If you are working following a diagnosis of MND, you may be concerned about whether you can continue in your professional role. This can feel very confusing, but try not to make any decision in haste. There are various directions to explore. You may need to consider how to:
- identify and manage issues that may occur if you do continue
- reduce your working hours or change your pattern of work
- determine the best way of leaving work should you make this decision
- prepare for the emotional and financial impact of leaving work
Family carers may also need to consider work and benefit options as the care needs increase.