Telling children what is happening following a diagnosis of MND can be very difficult. It is natural to try and protect children from distress, but if the situation is not explained, they may make their own conclusions. This can lead to greater worry and they may even blame themselves.
To help families communicate about MND, we provide information to support children and young people who are close to someone living with MND.
The information has been developed with the help and support of health and social care professionals, MND Association volunteers and young people affected by MND. We are especially indebted to the young people affected by MND who have given their time and support to the development of this literature.
When someone close has MND
When someone close has MND is an interactive workbook to help trusted adults to inform children aged between 4 and 10 years about motor neurone disease (MND). It is designed for adults and children to work through the book together, to introduce information on MND to children as and when the time is appropriate. Children can take part in a variety of activities in the workbook if they wish, which have been developed to promote coping strategies.
The MND Association is indebted to Liz Gale of the Trinity Hospice for her input and expertise into the development of this resource.
You can obtain a copy of the workbook by contacting MND Connect 08457 626262 firstname.lastname@example.org