We produce a wide variety of publications for anyone interested in MND. All of our publications are checked for accuracy at time of print. Any corrections pending the next revision are listed in Corrections to publications.
We welcome your views on our care information as explained on our feedback page.
Most of our publications can be downloaded, as listed under Information for download at the bottom of this page. However, you can also order them in printed format from our helpline, MND Connect. The team will be able to direct you to publications suitable for your needs.
Living with motor neurone disease
This is our main guide for people with MND, providing an overview of the disease and how to manage its impact. This can be ordered as a printed pack with additional items or accessed as a separate item from the download list on this page. The guide has been developed to help people with MND achieve the best possible quality of life from diagnosis onwards. It includes top tips, directions to further information, details about accessing support services and write-on pages to keep track of important records. (Code: LW002)
Available as printed items only:
Caring and MND: support for you
Comprehensive information for family carers, who are supporting someone living with MND. This pack is designed to support the carer's individual needs during the caring role and is accompanied by our information sheets on benefits and entitlements. (Code: CP004)
When someone close has MND
An interactive workbook thoughtfully developed to inform children aged between 4 and 10 years about MND. (Code: YP001)
A guide for claiming Disablity Living Allowance and Attendance Allowance (Code: LW005)
An A5 booklet with a range of easy to swallow meals. (Code: LW004)
Notepad for people with speech difficulties
Each page is headed with: I can understand you but have difficulty speaking please read on. (Code: MC001)
Speech card for people with speech difficulties
This credit card sized item states: "I have a physical problem which affects my speech, but I can hear and understand you. Your help and patience would be appreciated. Thank you" (Code: MC002)