The resources here have been developed to help health and social care professionals who are caring for people affected by MND. All publications are regularly revised and correct at time of print. Any corrections pending the next revision are listed in Corrections to publications.
You may also find our wide range of publications for people affected by the disease useful.
We welcome your views on our care information as explained on our feedback page.
Most of our publications can be instantly downloaded, as listed under Information for download at the bottom of this page. If the item you require is not available for download, please contact our advice, information and support team MND Connect on 01604 611870.
The following items are available in print only:
Motor Neurone Disease: a problem solving approach
Commonly referred to as our 'GP Booklet', this free A5 guide to MND has been designed to assist general practitioners and the primary health care team. Subjects include presentation and aetiology of the disease, symptom control and equipment. (Code: PX016)
MND Resource File: a patient and carer centred approach
A comprehensive guide to MND, encapsulatin key issues relating to the multidisciplinary management of the disease. Presented in an A4 binder (Code: PX018)
Price £10, plus postage and packing.
Motor Neurone Disease: how to find out more
A free introductory leaflet providing a basic outline of the disease, our services at the Association and the publications we can provide. Professionals are encouraged to order multiple copies to hand to users of their service. (Code: LW001)
Disability Living Allowance/Attendance Allowance
A free guide to providing medical evidence for people with MND (Code: PX001)
DVD: Swallowing Difficulties
Length: 22 minutes. Produced by the Australian MND Association. Outlines the possible problems and offers practical suggestions for the management of swallowing difficulties. Price £25, plus postage and packaging (includes an accompanying booklet) (Code: PX024)
DVD: Management of respiratory insufficiency in MND (NIV)
The DVD aims to improve knowledge, understanding and practice in relation to respiratory management in MND. Accompanied by relevant information sheets and notes on NICE guidance for non-invasive ventilation (NIV) and MND. (Code: PX025)
Respiratory checklist
A credit card sized tool to carry with you, to assist when checking respiratory symptoms for people with MND (Code: PX019)
Caring and MND: support for you
A comprehensive guide for family and unpaid carers who support someone living with MND. This focuses on the well being of the carer with directions to appropriate services. Free to carers, this publication is also available to health and social care professionals - price £25, plus postage and packaging. (Code: CP004)
