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Personal Experiences of MND

Please read previous stories that have been submitted.

David

On the whole, I have had a very healthy life. Until the bombshell of motor neurone disease (MND) dropped on me in 2012, I had had just one day off work in the last 12 years. Read David's story.

My mother Cathy

Cathy was 59 when she was diagnosed with MND in 2006 – fashionable, vivacious and full of laughter. Sophie her daughter shares her story.

Our mum Beryl

Nicola shares her mum's story.

Melvyn

Helen remembers her dad Melvyn and how he kept his ‘thousand yard grin’ until the very end.

My dad Tony

Tony Wheaton

Kerrie remembers her dad Tony. A special dad, grandad and husband who always had a smile.

June's Story

June ExperiencesOfMND

June’s journey with MND started three years ago. It took months for her to be correctly diagnosed. Despite her diagnosis, June says she wants to give something back and plans to leave her body for medical research.

Luke's dad - Colin

Luke writes about how MND affected his dad, Colin, and his family. Luke says that if he could offer one piece of then it is to do as much as you can with your loved one as time is precious.

Brendan

Irene remembers her husband Brendan. Brendan passed away in January 2009.

My mum Lambrini

Maria talks candidly about her mum's experience of living with MND. Lambrini sadly passed away on 10 June 2011.

Jeff

Jeff Hards

Jeff writes about the frustration he feels for not being able to do the simplest of things. However he also outlines the importance of keeping up the fight and making the most of life.

Carol

Carol Gormley

Carol writes about her diagnosis and says that she may have MND but it doesn't have her!

My sister Karen

Gale Gallagher talks about her sister Karen's life with MND and how important it is to access help and support as quickly as possible.

Mark

Mark Glover

"I've been living with the diagnosis of MND since November 2007," explains Mark. "And in that time the insidious nature of the disease has totally transformed my life."
Mark keeps a blog partly so that his family and friends are kept up-to-date, but also to share his experiences and raise awareness of what it is like to live with MND.

Emma and her beloved mum Gwen

Emma with her mum Gwen

Emma is 19 and here she tells her story about her beloved mum Gwen who passed away in November at the age of 48.

Kate remembers her mum Joan

Joan Hall

My mum’s symptoms started with her feeling generally unwell and feeling as though she had irritable legs and muscles jumping at the top of her arms.

Sue and Steve Skerrett

Sue and Steve Skerrett

Sue talks about her husband's Steve's diagnosis of MND.

Richard and his Mam Brenda

 Brenda Bentley with her grandaughter

Richard's Mam had MND for about 10 months before she died She was actually only diagnosed two weeks before her death.

Victoria

Victoria describes her mother Brenda's brave battle with MND. Brenda died aged 61 at the Prospect Hospice in Swindon.

Prof D Mark Cato

Prof D Mark Cato

Prof D Mark Cato was diagnosed with MND in February 2008. Since his diagnosis he has been committed to designing a number of gadgets to help him live with the disease. He’s also been keeping a diary which he is now turning into a blog.

Louise and her mum Jean

Louise says her mum was a very proud and brave lady, always smiling and giving the 'thumbs up' sign.

Kate

One woman's discovery that the impact of MND transcends all barriers, including divorce.

Kerry and her mother Rosaleen

Kerry talks about the progression of her mum Rosaleen's MND. Sadly Rosaleen died in September 2008.

Rebecca

Rebecca with her dad Allan

Teenager Rebecca shares memories of her beloved dad and describes the emotional rollercoaster of having a parent diagnosed with MND.

Esther

Esther, who has MND

Esther, 32, was diagnosed with MND in May 2002. Since then she has faced more trials than tribulations. But in June 2006 her greatest dream came true...to meet her hero Jon Bon Jovi.

Peter

Peter photo

Peter no longer has the use of his arms or legs, and movement in his fingers is restricted to operating a keyboard mouse. Yet each new day is a reason for him to live.

Margaret

Margaret with her mum June

Margaret cared for her mum during the last few months of her life and marvelled at her indomitable spirit.

Leanne

Leanne with her Gran

Leanne recalls the precious few days she had left with her Gran following a diagnosis of MND.

Emily

Emily Whose Father Died From MND

Following the death of her father, Emily studied to be a Scientist. She now researches MND, and is determined to unravel the mysteries of the disease.

Penny

Penny, who has MND, on holiday with her husband Michael

When Penny learnt she had MND, she resolved to travel the world. A flight of fancy? Penny thinks not.

Marcelin

Marcelin, who has MND

A diagnosis of MND may seem like the end of the world. But it needn't be. Marcelin reflects on doors that have closed, and opened, since discovering he had MND.

Lesley

Lesley and John

Despite losing the ability to walk and talk, Lesley's brother John remained determined to control the way he lived...and died.

Tracey

Tracey and her dad

Life was turned upside down for 17-year-old Tracey when she discovered her Dad had MND. Now aged 20, she reflects on the experience and talks about running the London Marathon.

Sarah

Sarah, 40

Despite gradually losing the use of her arms and speech, this mother-of-two has found ways to communicate again.

Lucy

Lucy with mum Carole

At 24, Lucy is one of the youngest people in the UK to have MND. Yet she looks to the future with optimism and a determination to live the remainder of her life to the full.

Mike

Mike, 55

When Mike, 55, decided to purchase a mobility scooter, he found himself somewhat baffled by the range on offer. So he took a pragmatic approach and here describes his road to success.

Amy

Amy's story of her grandmother's life with MND.

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