Over 5,000 people in the UK are facing life with Motor Neurone Disease. In this section, people with MND, their friends, family, carers, volunteers and Health and Social Care Professionals, all share their personal experiences of the disease.
To share your experiences of MND, please email your story along with a photograph to communications@mndassociation.org. Personal stories should be no longer than 300 words. We reserve the right to edit submissions.
Jeff writes about the frustration he feels for not being able to do the simplest of things. However he also outlines the importance of keeping up the fight and making the most of life.
Carol writes about her diagnosis and says that she may have MND but it doesn't have her!
Gale Gallagher talks about her sister Karen's life with MND and how important it is to access help and support as quickly as possible.
"I've been living with the diagnosis of MND since November 2007," explains Mark. "And in that time the insidious nature of the disease has totally transformed my life."
Mark keeps a blog partly so that his family and friends are kept up-to-date, but also to share his experiences and raise awareness of what it is like to live with MND.
Emma is 19 and here she tells her story about her beloved mum Gwen who passed away in November at the age of 48.
My mum’s symptoms started with her feeling generally unwell and feeling as though she had irritable legs and muscles jumping at the top of her arms.
Sue talks about her husband's Steve's diagnosis of MND.
Richard's Mam had MND for about 10 months before she died She was actually only diagnosed two weeks before her death.
Prof D Mark Cato was diagnosed with MND in February 2008. Since his diagnosis he has been committed to designing a number of gadgets to help him live with the disease. He’s also been keeping a diary which he is now turning into a blog.
Victoria describes her mother Brenda's brave battle with MND. Brenda died aged 61 at the Prospect Hospice in Swindon.
Louise says her mum was a very proud and brave lady, always smiling and giving the 'thumbs up' sign.
Kerry talks about the progression of her mum Rosaleen's MND. Sadly Rosaleen died in September 2008.
One woman's discovery that the impact of MND transcends all barriers, including divorce.
Teenager Rebecca shares memories of her beloved dad and describes the emotional rollercoaster of having a parent diagnosed with MND.
Peter no longer has the use of his arms or legs, and movement in his fingers is restricted to operating a keyboard mouse. Yet each new day is a reason for him to live.
Margaret cared for her mum during the last few months of her life and marvelled at her indomitable spirit.
Esther, 32, was diagnosed with MND in May 2002. Since then she has faced more trials than tribulations. But in June 2006 her greatest dream came true...to meet her hero Jon Bon Jovi.
When Penny learnt she had MND, she resolved to travel the world. A flight of fancy? Penny thinks not.
Leanne recalls the precious few days she had left with her Gran following a diagnosis of MND.
Following the death of her father, Emily studied to be a Scientist. She now researches MND, and is determined to unravel the mysteries of the disease.
Despite losing the ability to walk and talk, Lesley's brother John remained determined to control the way he lived...and died.
Life was turned upside down for 17-year-old Tracey when she discovered her Dad had MND. Now aged 20, she reflects on the experience and talks about running the London Marathon.
Jacqueline was pregnant with her second child when she heard she had MND. She refused to believe the diagnosis at first.
A diagnosis of MND may seem like the end of the world. But it needn't be. Marcelin reflects on doors that have closed, and opened, since discovering he had MND.
Despite gradually losing the use of her arms and speech, this mother-of-two has found ways to communicate again.
When Mike, 55, decided to purchase a mobility scooter, he found himself somewhat baffled by the range on offer. So he took a pragmatic approach and here describes his road to success.
At 24, Lucy is one of the youngest people in the UK to have MND. Yet she looks to the future with optimism and a determination to live the remainder of her life to the full.
Amy's story of her grandmother's life with MND.
Life With MND
