Life With MND
Personal Experiences of MND
Over 5,000 people in the UK are facing life with Motor Neurone Disease. In this section, people with MND, their friends, family, carers, volunteers and Health and Social Care Professionals, all share their personal experiences of the disease.
To share your experiences of MND, please email your story along with a photograph to communications@mndassociation.org. Personal stories should be no longer than 300 words. We reserve the right to edit submissions.
Teenager Rebecca shares memories of her beloved dad and describes the emotional rollercoaster of having a parent diagnosed with MND.
Peter no longer has the use of his arms or legs, and movement in his fingers is restricted to operating a keyboard mouse. Yet each new day is a reason for him to live.
Margaret cared for her mum during the last few months of her life and marvelled at her indomitable spirit.
When Penny learnt she had MND, she resolved to travel the world. A flight of fancy? Penny thinks not.
Leanne recalls the precious few days she had left with her Gran following a diagnosis of MND.
Esther, 32, was diagnosed with MND in May 2002. Since then she has faced more trials than tribulations. But in June 2006 her greatest dream came true...to meet her hero Jon Bon Jovi.
Following the death of her father, Emily studied to be a Scientist. She now researches MND, and is determined to unravel the mysteries of the disease.
Despite losing the ability to walk and talk, Lesley's brother John remained determined to control the way he lived...and died.
Life was turned upside down for 17-year-old Tracey when she discovered her Dad had MND. Now aged 20, she reflects on the experience and talks about running the London Marathon.
Jacqueline was pregnant with her second child when she heard she had MND. She refused to believe the diagnosis at first.
A diagnosis of MND may seem like the end of the world. But it needn't be. Marcelin reflects on doors that have closed, and opened, since discovering he had MND.
Despite gradually losing the use of her arms and speech, this mother-of-two has found ways to communicate again.
At 24, Lucy is one of the youngest people in the UK to have MND. Yet she looks to the future with optimism and a determination to live the remainder of her life to the full.
