Life With MND
Marcelin
My diagnosis was very difficult to come to terms with. You always think it will happen to someone else.
But I'm determined to stay positive. The best way to cope with MND is to accept it and adapt your life.
I am a black belt in judo, but can no longer train because I have no strength in my arms and legs. So instead I have focused my energy on fulfilling a lifelong ambition...sailing.
I have joined a local disabled sailing club, which has become an important part of my life. I have made many new friends and it is refreshing to be outside, doing something physical. The alternative would be sitting indoors, getting bored.
I’m very grateful for the support of the MND Association’s Regional Care Adviser and my local Branch meetings. I try and attend the Branch meeting every month. It is an opportunity for me to meet other people with MND. I have met so many positive people in similar situations. They are a real inspiration to me. I’m now thinking of taking up a Branch Committee role because I want to give something back.
In the meantime I have a number of other projects to help keep me going, including studying part-time for a PhD in Engineering.
I remain optimistic that there will be a cure for MND one day. It is a challenge for the 21st century and I think science will find a way.
