Publications - People with MND and Carers
If you are unsure which publications would be useful or if your question does not appear to be answered by any of our titles please contact the MND Connect Team.
It is nice to have information written down, so we can refer to it as and when needed. So much is just told you verbally which you soon forget. Well done!
Person affected by MND
'When someone close has MND' is an interactive workbook thoughtfully developed to inform children aged between 4 and 10 years about MND. Please order through the MND Connect Team
'So what is MND anyway?' aims to inform and support young people affected by MND, from the point of diagnosis and throughout their journey. Available for download below.
The following titles are not available for download at present, please order through the MND Connect Team
DON'T DeLAy
A guide for claiming Disablity Living Allowance and Attendance Allowance
Recipe Collection
An A5 booklet with a range of easy to swallow meals.
Notepad for people with speech difficulties
(each page headed with: I can understand you but have difficulty speaking please read on)
Speech card for people with speech difficulties (credit card size)
I have a physical problem which affects my speech, but I can hear and understand you. Your help and patience would be appreciated. Thank you
Titles available for download:
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Personal Guide (1080kb)
Your personal guide to MND; presented in an A4 binder and includes a range of practical advice and information focusing on helpling people with MND and those close to them understand their diagnosis and what to do next.
Add on optional sections for the Personal Guide: -
Carers (132kb)
Carers Booklet -
Children & Young People (96kb)
Children & Young People -
Eating & Drinking (214kb)
Eating & Drinking -
End Of Life Decisions (132kb)
End Of Life Decisions -
More About MND (154kb)
More About MND -
Movement & Mobility (120kb)
Movement & Mobility -
Speech & Communications (126kb)
Speech & Communications -
Symptoms (159kb)
Symptoms
Information Sheets -
Inf01 Clothing Ideas. (297kb)
Information sheet clothing -
Inf02 Kennedy's Disease (69kb)
Info sheet 2 Kennedy's -
Inf03 Holiday Information (148kb)
Info sheet 3 Holidays -
Inf06 MND Statistics (189kb)
Info sheet 06 statistics -
Inf07 Motoring and MND (317kb)
Info sheet 07 Motoring and MND -
Inf08 Choosing the right Vehicle (210kb)
Info sheet 8 Choosing the right Vehicle for you -
Inf09 Riluzole. (118kb)
Riluzole -
Inf10 Equipment Provision by the MND Association (421kb)
Info sheet 10 equipment loan -
Inf11 PEG Feeding (78kb)
Info sheet 11 peg -
Inf12 Oral Hygiene (64kb)
Info sheet 12 oral hygiene -
Inf13 Complementary Therapies (84kb)
Info sheet 13 complementary therapies -
Inf14A Understanding how MND might affect your breathing (122kb)
Info sheet 14a how MND affects breathing -
Inf14B Ventilation in MND (87kb)
Info sheet 14b ventilation -
Info 14D Trouble shooting and NIV (91kb)
Trouble shooting problems when using Non Invasive Ventilation -
Info 14E Air Travel (88kb)
Air travel for people with MND and those using Non Invasive Ventilation -
Inf15 Primary Lateral Sclerosis (64kb)
Inf 15 Primary Lateral Sclerosis -
Inf16 Care Centres (39kb)
MND Care Centre Programme -
Inf17 PMA (67kb)
Progressive Muscular Atrophy -
Inf18 Understanding and coping with bereavement.doc (34kb)
Understanding and Coping with Bereavement -
Info Page 19 ADRT Explained (102kb)
Information Sheet 19
Advance Decision to Refuse Treatment Explained -
Microsoft Word - Inf20 Sex and Relationships.doc (24kb)
Intimacy and disability explored -
Advance Decision to Refuse Treatment Full Pack (289kb)
Advance Decision to Refuse treatment Full pack -
So what is MND Anyway?.doc (99kb)
A guide for young people affected by MND
