Publications - People with MND and Carers
If you are unsure which publications would be useful or if your question does not appear to be answered by any of our titles please contact the MND Connect Team.
It is nice to have information written down, so we can refer to it as and when needed. So much is just told you verbally which you soon forget. Well done!
Person affected by MND
'When someone close has MND' is an interactive workbook thoughtfully developed to inform children aged between 4 and 10 years about MND. Please order through the MND Connect Team
'So what is MND anyway?' aims to inform and support young people affected by MND, from the point of diagnosis and throughout their journey. Available for download below.
The following titles are not available for download at present, please order through the MND Connect Team
DON'T DeLAy
A guide for claiming Disablity Living Allowance and Attendance Allowance
Recipe Collection
An A5 booklet with a range of easy to swallow meals.
Notepad for people with speech difficulties
(each page headed with: I can understand you but have difficulty speaking please read on)
Speech card for people with speech difficulties (credit card size)
I have a physical problem which affects my speech, but I can hear and understand you. Your help and patience would be appreciated. Thank you
Titles available for download:
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Personal Guide (1080kb)
Your personal guide to MND; presented in an A4 binder and includes a range of practical advice and information focusing on helpling people with MND and those close to them understand their diagnosis and what to do next.
Add on optional sections for the Personal Guide: -
Carers (132kb)
Carers Booklet -
Children & Young People (96kb)
Children & Young People -
Eating & Drinking (214kb)
Eating & Drinking -
End Of Life Decisions (132kb)
End Of Life Decisions -
More About MND (154kb)
More About MND -
Movement & Mobility (120kb)
Movement & Mobility -
Speech & Communications (126kb)
Speech & Communications -
Symptoms (159kb)
Symptoms
Information Sheets -
Information Sheet 01 - Clothing ideas (167kb)
Information sheet on ideas for clothing -
Information Sheet 02 - Kennedy's disease (132kb)
Information Sheet 2 on Kennedy's Disease -
Information Sheet 03 - Holiday information (163kb)
Info sheet 3 on holiday information, including booking and accommodation accessibility -
Information Sheet 06 - MND statistics (135kb)
Information sheet 06 on statistics regarding MND -
Information Sheet 07 - Motoring and motor neurone disease (MND) (148kb)
Information sheet 07 on Motoring and MND -
Information Sheet 08 - Choosing the right vehicle for you (160kb)
Information sheet 08 on choosing the right vehicle for you -
Information Sheet 08 - Choosing the right vehicle for you (160kb)
Information sheet 08 on choosing the right vehicle for you -
Information Sheet 09 - Riluzole questions and answers (135kb)
Information Sheet 09 with questions and answers on Riluzole -
Information Sheet 10 - Equipment provision by the MND Association (225kb)
Information sheet 10 on equipment provision by the MND Association through the Equipment Loan department -
Information Sheet 11 - PEG feeding - making the decision (190kb)
Information sheet 11 on PEG feeding and making the decision -
Information Sheet 12 - Oral hygiene (147kb)
Information sheet 12 on oral hygiene -
Information Sheet 13 - Complementary therapies (156kb)
Information sheet 13 on complementary therapies -
Information sheet 14A - How motor neurone disease (MND) might affect your breathing (183kb)
Information sheet 14a on understanding how NMD might affect breathing -
Information Sheet 14B - Ventilation in motor neurone disease (MND) (155kb)
Information sheet 14b on ventilation in MND -
Information Sheet 14C - NICE clinical guidelines for non-invasive ventilation (NIV).pdf (142kb)
Information Sheet 14C - an introduction to the NICE clinical guidelines for non-invasive ventilation NIV -
Information Sheet 14D - Trouble shooting and non-invasive ventilation (NIV) (161kb)
Information sheet 14D on trouble shooting problems when using Non Invasive Ventilation -
Information sheet 14E - Air Travel and non-invasive ventilation (NIV) (154kb)
Information sheet 14E on air travel for people with MND and those using Non Invasive Ventilation -
Information Sheet 15 - Primary lateral sclerosis (167kb)
Information sheet 15 on primary lateral sclerosis -
Information Sheet 16 - MND Care Centre Programme (208kb)
Information sheet 16 on the MND Care Centre programme -
Information Sheet 17 - Progressive muscular atrophy (172kb)
Information sheet 17 on progressive muscular atrophy -
Information Sheet 18 - Understanding and coping with bereavement (160kb)
Information Sheet 18 on understanding and coping with bereavement -
Information Sheet 19 - Advance Decision to Refuse Treatment (ADRT) Explained (154kb)
Information Sheet 19 on Advance Decision to Refuse Treatment (ADRT) explained -
Information Sheet 20 - Sex and relationships (157kb)
Information sheet 20 on sex and relationships, exploring intimacy and disability -
Information Sheet 21 - Physiotherapy for people with motor neurone disease (MND) (160kb)
Information sheet 21 on physiotherapy for people living with MND -
Information Sheet 23 - Cognitive impairment in motor neurone disease (MND) (147kb)
Information sheet 23 on Cognitive impairment in motor neurone disease (MND) -
Information Sheet 25 - Travel and transport considerations (176kb)
Advice on travel and transport, including accessibility -
Advance Decision to Refuse Treatment Full Pack (289kb)
Advance Decision to Refuse treatment Full pack -
So what is MND Anyway?.doc (99kb)
A guide for young people affected by MND
