Publications - People with MND and Carers
Person affected by MND
The following titles are not available for download at present, please order through the MND Connect Team
When someone special has Motor Neurone Disease.
Booklet for children aged 6-12 years old - A simple illustrated booklet about MND written for children to read on their own or with an adult.
When your parent has Motor Neurone Disease
Personal feelings of young people when a family member has the disease.
DON'T DeLAy
A guide for claiming Disablity Living Allowance and Attendance Allowance
Recipe Collection
An A5 booklet with a range of easy to swallow meals.
Notepad for people with speech difficulties
(each page headed with: I can understand you but have difficulty speaking please read on)
Speech card for people with speech difficulties (credit card size)
I have a physical problem which affects my speech, but I can hear and understand you. Your help and patience would be appreciated. Thank you
Titles available for download:
-
Personal Guide (1080kb)
Your personal guide to MND; presented in an A4 binder and includes a range of practical advice and information focusing on helpling people with MND and those close to them understand their diagnosis and what to do next.
Add on optional sections for the Personal Guide: -
Carers (132kb)
Carers Booklet -
Children & Young People (96kb)
Children & Young People -
Eating & Drinking (214kb)
Eating & Drinking -
End Of Life Decisions (132kb)
End Of Life Decisions -
More About MND (154kb)
More About MND -
Movement & Mobility (120kb)
Movement & Mobility -
Speech & Communications (126kb)
Speech & Communications -
Symptoms (159kb)
Symptoms
Information Sheets -
Inf01 Clothing Ideas. (297kb)
Information sheet clothing -
Inf02 Kennedy's Disease (69kb)
Info sheet 2 Kennedy's -
Inf03 Holiday Information (148kb)
Info sheet 3 Holidays -
Inf06 MND Statistics (189kb)
Info sheet 06 statistics -
Inf07 Motoring and MND (317kb)
Info sheet 07 Motoring and MND -
Inf08 Choosing the right Vehicle (210kb)
Info sheet 8 Choosing the right Vehicle for you -
Inf09Riluzole. (118kb)
Riluzole -
Inf10 Equipment Provision by the MND Association (421kb)
Info sheet 10 equipment loan -
Inf11 PEG Feeding (78kb)
Info sheet 11 peg -
Inf12 Oral Hygiene (64kb)
Info sheet 12 oral hygiene -
Inf13 Complementary Therapies (84kb)
Info sheet 13 complementary therapies -
Inf14A Understanding how MND might affect your breathing (122kb)
Info sheet 14a how MND affects breathing -
Inf14B Ventilation in MND (87kb)
Info sheet 14b ventilation -
Info 14D Trouble shooting and NIV (91kb)
Trouble shooting problems when using Non Invasive Ventilation -
Info 14E Air Travel (88kb)
Air travel for people with MND and those using Non Invasive Ventilation -
Inf15 Primary Lateral Sclerosis (64kb)
Inf 15 Primary Lateral Sclerosis -
RIGHTS AND RESPONSIBILITIES (22kb)
List of Information sheet titles in the Rights and Responsibilities series -
InfR1The NHS and Social Services.doc (122kb)
InfR1 The NHS and Social Services -
InfR2 Complaint procedures.doc (134kb)
InfR2 Complaint procedures -
InfR3 Access to Equipment.doc (141kb)
InfR3 Access to Equipment -
InfR5 Disabled Facilities Grants.doc (138kb)
InfR5 Disabled Facilities Grants -
InfR6 Direct Payments Scheme.doc (104kb)
InfR6 Direct Payments Scheme -
InfR7 Welfare Benefits Rights.doc (128kb)
Welfare Benefits and Rights -
InfR8 Care Homes.doc (138kb)
Care Homes -
InfR9 Carers.doc (127kb)
Carers -
InfR10 NHS FUNDED CONTINUING CARE.doc (130kb)
Continuing care -
InfR12 Disability Discrimination.pdf (54kb)
Disability Discrimination -
InfR13 Human Rights.doc (125kb)
Human Rights -
InfR14 Contacting your Member of Parliament.doc (54kb)
Contacting your Member of Parliament -
InfR15 VAT relief for people with disabilities.doc (54kb)
VAT relief for people with disabilities -
InfR16 Early Pension Payments.doc (154kb)
Early Pension Payments





