Useful Organisations and internet sites
The following websites contain a wealth of information on a range of subjects which people living with MND may find beneficial.
Whilst we cannot take responsibility for the content on external websites, we endeavour to ensure that websites we link to, are a reliable source of information.
www.ableradio.com
Able Radio is a community radio providing people with a disability or a health/medical condition, a voice.
Ability Net
A specialised communications company giving advice on computer equipment and software for people with speech or mobility difficulties.
Ace Centres
Offering a wide range of services to support learning and communication through Assistive Technology and Alternative and Augmentative communication systems.
The British Medical Acupuncture Society
For advice and therapists in acupuncture.
www.drbabel.co.uk
Enabling individuals to create a simple medical record online that can be translated accurately into many languages then printed off.
Blue Badge
National Association of Blue Badge Holders.
Build-uk.net
Building a motor neurone disease network for the UK
www.cqc.org.uk
The Care Quality Commission is the independent regulator of health and social care in Britain.
Carers UK
Carers UK is an organisation whose aim is to uphold the rights of the many carers in the UK today.
Changing Places
The Changing Places toilets are for disabled people who cannot use standard accessible toilets.
Citizens Advice Bureau
By providing free advice and information the CAB can help people resolve many problems encountered in everyday life.
Cinnamon Trust
The Cinnamon Trust is a charity for elderly and terminally ill people and their much loved pets.
Counsel and Care
Counsel and Care is a national charity whose aim is to get the best care and support for older people, their families and carers.
British Association for Counselling and Psychotherapy
For advice and therapists in counselling and psychotherapy.
Cruse Bereavement Care
Cruse can provide information and advice to anyone who has been affected by bereavement.
Demand
Demand - Design and Manufacture for Disability.
Direct Enquiries
Direct Enquiries details the disabled access and facilities at tens of thousands of locations across the UK.
Direct Gov
This Government website offers a wide range of public service information, and services, online.
DisabledGo
DisabledGo provides free detailed access information for disabled people across the UK and Ireland.
www.disabledholidaydirectory.co.uk
Holiday information for people with disabilities.
The Disability Alliance
The Disability Alliance provides information on social security benefits and tax credits to disabled people.
Disabled Living Foundation
The DLF offers information on all types of disabled equipment.
Dptac
Disabled Persons Transport Advisory Committee
Department for Social Development in Northern Ireland
The Dsdni has strategic responsibility for urban regeneration, community and voluntary sector development, social legislation, housing, social security benefits, pensions and child support.
The Department of Work and Pensions
Advice on services and benefits for working age people, families, the retired, and disabled people and their carers.
Emergency SMS
Emergency SMS is a service that allows deaf, hard of hearing and speech impaired people in the UK to send a text message to 999.
Expert Patient Programme
The Expert Patient Programme offers free self-management courses for people living with any long-term health condition.
Fashion Freaks
Dress to impress with Fashion Freaks.
Forum of Mobility Centres
16 centres offering practical information on car adaptations.
Healthtalk online
People's stories; see, hear and read their experiences
Holiday Care
Holiday Care provides information about transport, accomodation, holidays and respite care establishments in the UK and abroad.
www.trusthomeopathy.org/
The British Homeopathic Association give details and information about homeopathy, and practioners.
Hospice UK
Website providing information on hospice and palliative care services in the UK and abroad.
ICAS
ICAS or the Independent Complaints Advocacy Service, is a free confidential service for patient's of the NHS who are unhappy with the treatment they have received.
ICE In case of Emergency
Storing next of kin details in your mobile phone can help the emergency services if you are unable to tell them who to contact
Independent Living Fund
National resource dedicated to the financial support of disabled people enabling them to choose to live in the community rather than residential care.
Information Technology Can Help (ITCH)
ITCH is a programme of the British Computing Society (BCS). The ITCH Network provides disabled people with effective Information Technology solutions.
Just Mobility
Website for advertising adapted vehicles and mobility products and information on disability products and services.
Lasting Post
Discusses how to plan a funeral and matters arising from bereavement.
Leonard Cheshire
Leonard Cheshire Disability exists to change attitudes to disability and to serve people with disabilities around the world
www.lougehrig.com
The official website of Lou Gehrig the American baseball hero who had his career cut short when he was diagnosed with ALS.
Look after our NHS
Information about how public money is being spent within the NHS
Other MND Organisations
Links to other MND Associations
Open Britain
OpenBritain is a guide book and web site providing information on UK tourism and holidays, for people with disabilities and specific access requirements.
Patientslikeme
Patients helping patients live better everyday
Patient Opinion
Your story can change the NHS. Tell people your story and read what happended to them.
The Possum Group
The Possum Group provides up to date technology information in the fields of Environmental Controls and Comunication Equipment.
The British Red Cross
Help with care in the home and the community, transport services and loan of medical equipment
Association of Reflexologists
For advice and therapists in reflexology.
The Princess Royal Trust for Carers
The Princess Royal Trust for Carers is the largest provider of comprehensive carers support services in the UK.
Radar
RADAR is a national network of disability organisations and disabled people.
The Relatives and Residents Association
The Relatives and Residents Association exists for people needing or living in residential care and their families and friends.
Remap
Remap; custom made equipment helping people with disabilities to achieve independence and enjoyment of life's opportunities.
Remap is a charity which gathers together skilled volunteers to produce one-off pieces of equipment where no existing equipment can help.
Ricability
Ricability is an independent consumer research charity providing free, practical, impartial reports of products and services for the disabled and older people.
Samaritans
Confidential, emotional support
TrainTaxi
The guide to taxis serving all train, tram, metro and underground stations in the UK
Tourism for all
Tourism for All UK is the UK Voice for Accessible Tourism. A national charity dedicated to making tourism welcoming to all
Thrive
Thrive is a UK national horticultural charity that promotes the use of gardening and horticulture.
Turn2Us
Turn2us will help access any money available to people, through benefits, grants and other financial help.
www.wfnals.org
The World Federation of Neurology Amyotrophic Lateral Sclerosis website.
The Wheelyboat Trust
The Wheelyboat Trust is a registered charity which helps people enjoy the waterways of the UK.
Which Hospital Companion
This guide aims to help you find out everything you need to know about going into hospital.
The Willow Foundation
The Willow Foundation is a national charity providing special days out for seriously ill 16 to 40 year olds.
www.w4b.org.uk
W4B, TV and radio charity aiming to provide radio and/or television sets for needy, elderly and disabled people who can't afford a set for themselves.
Writing to your MP
This website provides information about writing to your MP, Councillor, MEP and Welsh Assembly members.
Young Carers
Young carers are children or young people who look after someone in their family who has an illness or disability.
