Useful Internet Sites

Centres based in Oxford and Oldham providing services to support people living with communication difficulties.
The ACE Centre is a charitable company that is independent of all manufacturers and suppliers in the services they provide. They offer a wide range of services to support communication and learning through the use of Assistive Technology (AT) and Alternative & Augmentative Communication (AAC) systems and resources for children and adults with physical and communication difficulties.

Website of the ALS Association of America dedicated to the fight against ALS.
Its mission is to help people living with ALS, to endeavour to discover more about ALS and eventually find a cure.

Website serving as a resource and support for people living with MND, their families and caregivers. Their aim is to unite people living with MND to educate the public about ALS.
Contains a link to the International Alliance of ALS/MND Associations.

The (AOR) Association of Reflexologists provides up-to-date information on reflexology worldwide.
The Associations activities are largely educational and their aims include the promotion of reflexology, distribution of information, support of their members and the provision of a valuable service to the public.

Kings College MND Centre has set up this website specifically for people affected by MND.
The site can be used to contact others with a similar interest in MND - to decide what information and services should be provided, to tell people what you want and to share what you know. They have recently added a voting page and a chat room to communicate with others and let your views be known.

Carers UK is the voice of carers and the leading campaigning, policy and information organisation for carers."

By providing free advice and information the CAB can help people resolve many problems encountered in everyday life.

The British Association for Counselling and Psychotherapy (BACP) works closely with organisations nationally and internationally, from the NHS to independent practioners, helping to develop counselling and psychotherapy services

Cruse Bereavement Care exists to promote the well being of bereaved people enabling them to understand their grief and cope with their loss.

The Commission for Social Care Inspection (CSCI) is the independent social care watchdog for England. CSCI inspects and reports on social care services to help improve quality for people who use services. Visit CSCI's award-winning website where you can find out: -

• What you have a right to expect from your care service
• What to do if you are not happy with the care that you get
• How to get involved in inspections
  

This Government website offers a wide range of public service information, and services, online.

Direct Enquiries details the disabled access and facilities at tens of thousands of properties across the UK.  In addition, London Underground has recently launched an online service that provides information on the access available at every underground station.

The Disability Alliance provides information on social security benefits and tax credits to disabled people, their families, carers and professional advisers; undertakes research into the needs of disabled people, with particular emphasis on income needs and aims to promote a wider understanding of the views and circumstances of all disabled people.

A website giving information on suitable holiday accomodation for people with disabilities.

Enabling individuals to create a simple medical record online that can be translated accurately into many languages then printed off.
People living with MND qualify for a £2 discount off the £20 fee when using this service, if they use the link from our website to create their own medical record to take abroad.

Deaprtment for Social Development in Northern Ireland.
The Department for Social Development was established as part of the Northern Ireland Executive.
It has strategic responsibility for urban regeneration, community and voluntary sector development, social legislation, housing, social security benefits, pensions and child support.

Advice on services and benefits from the Department of Work and Pensions

The Disability Rights Commission has now closed and has been replaced by the Equality and Human Rights Commission.
The Equality and Human Rights Commission champions equality and human rights for all, working to eliminate discrimination, reduce inequality, protect human rights and to build good relations, ensuring that everyone has a fair chance to participate in society.

Holiday Care provides information about transport, accomodation, holidays and respite care establishments in the UK and abroad.

Combining the expertise of St Christophers Hospice and Help the Hospices, this website provides information on hospice and palliative care services in the UK and abroad.

Independent Living Fund: National resource dedicated to the financial support of disabled people enabling them to choose to live in the community rather than residential care.

The official website of Lou Gehrig the American baseball hero who had his career cut short when he was diagnosed with ALS.

The British Medical Acupuncture Society provides detailed information on acupuncture which is designed to help you decide if it might be useful to treat your condition, and lists practitioners.

Set up by the MND Care and Research Centre based at Kings College Hospital in London, you can find information about MND and the services available at the Clinic.

Patient Opinion is a not for profit social enterprise providing a website where patients and their carers can share their hospital experiences in their own words and in their own time.

The Possum Group provides up to date technology information in the fields of Environmental Controls and Comunication Equipment.

American website dedicated to raising funds to support people living with MND.

Scottish MND Association website giving information about MND and details of the services and support offered to people living with MND in Scotland.

SRS Technology. A range of assistive technology products, including personal environmental control systems.

Thrive is a UK national horticultural charity that promotes the use of gardening and horticulture for training and employment, therapy and health.

The British Homeopathic Association give details and information about homeopathy, including how to find a practitioner.

The World Federation of Neurology Amyotrophic Lateral Sclerosis website, linking researchers and clinicians worldwide with the goal of finding effective treatment and a cure for for ALS.