Life With MND
Living with PMA/PLS
Welcome to these pages for those people living with the less common forms of MND.
With Progressive Muscular Atrophy (PMA) affecting around 5% and Primary Lateral Sclerosis (PLS) affecting around 0.5% of all people living with MND, it is inevitable that people living with these variants, are geographically dispersed and can feel quite isolated.
Research leads many neurologists to view PMA and PLS as part of the spectrum of ALS, but in the short term (and for many, the medium and long term) they can behave quite differently.
Increasing disability affects everyone with MND, but PMA and PLS present their own problems and frustration at the lack of information and the inability to compare notes with others, compounds the difficulties faced by this small group of people.
Research leads many neurologists to view PMA and PLS as part of the spectrum of ALS, but in the short term (and for many, the medium and long term) they can behave quite differently.
Increasing disability affects everyone with MND, but PMA and PLS present their own problems and frustration at the lack of information and the inability to compare notes with others, compounds the difficulties faced by this small group of people.
