Experiences of living with PMA/PLS

Here we invite people living with PMA/PLS to tell their stories. 

If you would like to share your experiences of PMA/PLS with others on our website, email us with no more than 300 words, please include a photograph if you wish.

John

John was diagnosed in 1994. He says the Arizona sun helps with his condition.

Drew

Since being diagnosed with MND, Drew has a new best mate - his computer. His main hobby now is listening to mp3 music downloaded on his PC.

Jean

Trustee Jean Waters Jean has PMA, she says: "As it is five times more common in men than women it makes me one of a rare breed!"


Brian

Brian Wells 'A diagnosis of MND is never easy, but PLS has given me just that little more time to prepare,' says Brian.


Mike

Mike Findley 1 "Life with MND really is worth living," says Mike, who has PMA.


David

David has PLS. He says: "My wife, children and grandchildren are a continuing source of strength."