PMA/PLS Support Group

Have you been diagnosed with PMA/PLS? If so please read on...
Are you interested in joining our email-based support group?
People living in the UK who fall under this heading are inevitably geographically dispersed due to the rarity of their disease.

During the last few months we have been inviting people to take part in an interactive support group. We have been hugely encouraged by the number of people who have responded, expressing an interest in taking part and wanting contact with others. An e-mail based group is being launched as a result combining with the opportunity to contribute to the Experiences of PMA/PLS pages.

There may also be additional opportunities in the future for this group to look at developing our literature further ensuring it is more geared to the needs of people with slower progressing forms of MND.

Want to know more?

Jean Waters is a member of the MND Association Board of Trustees and has been living with PMA for around four years. Jean has kindly offered to take an active role in coordinating the email support group.

Jean hopes there will be a flow of hints, tips, advice and news within the e-mail support group via a regular e-mail update. She will make recommendations to the MND Association about articles of interest that are suitable to be featured on our website.

If you are interested in taking part you may want to let us know the type of MND you have and how long you have been living with the disease. This will give others the opportunity to contact people living with the same type of MND as they have.

Your details will be forwarded to other people also taking part in the email support group, so it is important that you feel comfortable and agree to share your email address with others. Your email address will not be given to anyone other than those already taking part in the support group and will not be published on our website.

If at any time you decide you no longer want to take part in the group, your details will be removed from the contact list.

Equally, if others decide they no longer wish to take part, you will agree to respect their wishes and not make further contact with them.

Interested?

Expressions of interest would be welcomed at this stage to care@mndassociation.org