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Experiences of taking part in research

Find out from people affected by MND why they decided to take part in a research project and what the experience meant to them.

MND Association forum

Visit our discussion thread on participation in research - ask the community a question or just read what others have to say.

Comments from BioMOx participants

Thoughts from people who have taken part in Dr Martin Turner's MND biomarker study (link to external site).

Discussions of clinical trials from HealthTalkOnline

Hear from people with a range of conditions discussing the decisions around taking part in clinical trials (link to external site).

Research People

Who are they, what they do, why they do it. Featured on this site is John Norwich, who has MND. A resource created by the National Institute for Health Research (NIHR).

Clinical trials - a patient perspective

turner and patient

Roche-sponsored website providing comments from people with a range of conditions who have taken part in clinical trials (link to external site).

Thumb Print articles on research participation

These articles from our members' magazine Thumb Print include comments from people who have taken part in research projects:

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