We are keen to support the activities of MND researchers, the following resources may be of assistance.
The DNA bank was established through funding from the MND Association and the Wellcome Trust and now contains DNA, EBV transformed cell lines and accompanying clinical data.
Guidelines on the use of preclinical models in ALS/MND research
For many years, translation of apparent therapeutic successes from in vivo models of ALS to the human disease has proven difficult. In 2005 a group of European MND researchers began work on some guiding principles of preclinical research and therapy development. A consensus paper was published in 2010: Ludolph et al ALS 2010;11(1-2):38-45.
The ALSoD online database is designed to provide both the scientific community and wider public with up-to-date information on genetic causes of MND. Features include study comparisons and bioinformatic links.
PRO-ACT Database
Launched in December 2012, this is a pooled resource of ALS clinical trial data, created by merging data from existing public and private clinical trials. It contains 8,500 unique patient records from the treatment and placebo arms of 18 phase II and phase III ALS/MND trials.
Assistance with recruitment for studies
In collaboration with the Dementias and Neurodegenerative Diseases Research Network (DeNDRoN), the MND Association holds a register of people with MND who are interested in participating in research. For more information on how this works and how this might help you, please visit the DeNDRoN website.
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We're keen to make this page a useful place of reference. If you'd like to share a resource with others, please contact us to add it.
