Daily Bulletins and Audio Downloads

At the end of every day of the conference (30 November to 2 December), new audio downloads and jargon-free bulletins will be posted here, giving the highlights of the clinical and scientific sessions of the meeting.

Stepping stone to stopping the progression of MND identified

Day 3: This session was devoted to the topic of non-neuronal (nerve) cells and their role in motor neurone disease.

Getting NIV right for the patient

Day 3: Recent research has proved that non-invasive ventilation (NIV) can improve the quality of life and the length of survival for many people with MND. But this therapy does not suit all patients.

When did Gehrig first develop MND?

Day 3: When did baseball legend Lou Gehrig first develop symptoms of MND - the condition that took his life, and to which he gave his name?

Entire human genome scan finds genetic clues to sporadic MND

Day 3: Today's closing session highlighted these new findings as a stand-out from this year's meeting. (External link)

Listen to news and interviews from Day 2

Day 2: Interview with Debra Garside   Listen

Topics of the "poster" session are on target

Day 2: An integral part of the International Symposium on ALS/MND is the poster session, which usually takes place on the morning of day 2 of the meeting.

Palliative care teams must think beyond cancer to help people with MND

Day 2: Palliative care needs to move beyond simply providing end-of-life care for cancer patients, so that it can meet the needs of people with MND.

Scientists reach concensus on guidelines for pre-clinical studies in MND

Day 2: “I thought that this afternoon’s session would be controversial and hotly debated, but we are all in agreement,” was the concluding comment at this afternoon’s session.

The Japanese approach to caring for people with MND

Day 2: Japan’s unique approach to caring for people with MND came under the spotlight today.

Listen to the news and interviews from Day 1

Day 1: Interview with Brian Dickie   Listen   

Day 1: What subtypes can tell us about MND   Listen 


Tangled theories for high incidence of MND around the Pacific Rim

Day 1: Two rare but possibly connected forms of MND that only affect people living on the Pacific Rim came under the spotlight at the opening session of the Symposium.

When the carers need carers . . .

Day 1: A strong network of support is as important for the relatives who care for people with Motor Neurone Disease as it is for those who have the condition.

New hope for the treatment of Kennedy's disease

Day 1: Kennedy’s disease is a rare, slowly progressing form of MND that only affects men. In order to develop potential therapies for this condition, it is necessary to understand the underlying cause of the disease.

Respiratory support creates a new "end point" to life with MND

Day 1: Permanent respiratory support has changed the "end point" of MND by allowing people to live much longer with the condition.