Daily Bulletins

At the end of every day of the conference (1 - 3 December) jargon-free bulletins will be posted here, giving the highlights of the clinical and scientific sessions of the meeting.

Day 1: Read the news from the first day

The first day of the conference included presentations on the exciting field of neurogenomics in the scientific sessions and cultural approaches to caring for people with MND in the clinical meeting.

Deputy Mayor welcomes delegates to Toronto

In his speech Mr Joe Pantalone thanked the delegates for all their hard work and dedication in researching treatments for ALS/MND.

MND: One disease or many?

Prof Strong presented his argument that ALS/MND is a combination of disorders by outlining how both anecdotal and evidence-based observations of patients with ALS/MND.

Better laboratory models for future research

The first ever stem cell derived human motor neurones that mimic ALS were described in a presentation of the first day of the Symposium.

Whole Person Care: Quality of life is not just about physical health

The first session on palliative care at the 18th International Symposium on ALS/MND paid tribute to the work of Dr Balfour Mount, MD, one of the pioneers of palliative care.

Cultural differences in end of life care

Dr David Oliver from the UK outlined the findings from a study looking into end of life care in the UK, USA and Japan during a presentation on the first day of the 18th International Symposium on ALS/MND.

Assistive technologies for spoken and written communications

Melanie Fried-Oken outlined how advances in technology has widely increased communication options for people with MND.

Day 2: Read the news from the second day

Read the news from the second day of the International Symposium

Tube feeding – a monumental step in the eyes of a person with MND

Dr Timothy Williams reported that many healthcare professionals fear that even the offer of PEG feeding may be construed as an unwelcome landmark on disease deterioration.

Three new susceptibility genes in MND identified

Researchers from The Netherlands and the UK respectively presented their latest results on the search for these elusive susceptibility genes.

Learning from experience

Health professionals are increasingly attempting to understand illness from the patient’s perspective.

Living with MND - a search for normality

Louise Locock presented the findings of a qualitative study interviewing with 40 people living with MND.

Day 3: Read the news from the third day

Read the news from the final day of the Symposium

Combination drug selection trial in ALS

Combining drugs that affect different aspects of neurodegeneration may be necessary to have a meaningful affect on treating ALS/MND.

Improved clearance of unwanted proteins may be beneficial in MND

How these proteins form and how they are removed in MND was one of the topics of a scientific session of on the last day of the International Symposium on ALS/MND.

Unproven cell-based treatments for ALS/MND: Lessons from Beijing

During a presentation at the 18th International Symposium Dutch neurologist, Dr van den Berg outlined the results from his clinical assessment of 12 patients who travelled to Beijing for stem cell therapy.