As soon as we learn of a new trial underway in the UK, we will post information on our website. We also work with the co-ordinators of the trial to produce information sheets for people with MND.
We are starting to create a list of people with MND who are interested in taking part in research. This is also known as a patient register. Inclusion in this list is optional and does not guarantee that you will be included in future research projects.
Download our information sheet for the UK clinical trial of lithium.
This project aims to build a collection of at least 5,000 DNA samples, taken from a simple blood test from people with MND, their carers and families. This will provide a valuable resource for researchers all over the world investigating the genetic causes of MND.
People with MND can also make a vital contribution towards finding the cause and developing treatments for the disease by donating their brain and spinal cord tissue for use in research after their death.
Dr Martin Turner is looking to enrol 70 people with MND and 25 healthy volunteers to take part in a project that will help to identify a predictable MND-specific 'fingerprint' or biomarker. This is a unique set of substances that help identify whether someone has MND.
We are currently reviewing our research FAQs and would appreciate your views.
Amanda Dean is looking for people with MND to participate in her PhD project to voice their views on the disease. This project plans to develop a new understanding of how people living with MND can maintain or increase health related quality of life, including for those who will be affected in the future.
Research
