DNA bank - information for researchers

Information for researchers, clinicians and research nurses about collecting and using the samples in our DNA bank.

There would not be a DNA bank without the generous participation of people living with MND. However, the researchers, clinicians and research nurses involved in collecting and using the samples in our DNA bank are also essential for the success of the project.

How can I use the samples in the DNA Bank?

We are currently developing the terms and conditions for applicants to use this resource. Informal enquiries by researchers should be made to Dr Brian Dickie.

DNA bank project adopted by the DeNDRoN network

The Association's DNA Bank project has been adopted by the MND Clinical Studies Group (CSG) of the Dementias and Neurodegenerative Diseases Research Network (DeNDRoN). This means that the DeNDRoN nurses within each of the Local Research Networks are aware of the Bank and can work with the Association, the project's research nurses and people living with MND, to raise awareness and increase participation in the project.

DeNDRoN Guidelines for participating in MND DNA Bank (136kb)

There is a Clinical Studies Group for each of the diseases within DeNDRoN. The aim of the CSGs is to facilitate the smooth running of 'adopted' research projects and to develop and design future clinical research ideas.

More information about DeNDRoN