DNA Bank and National Database

The MND DNA Bank and National Database is the most ambitious research project ever undertaken by the Association. DNA Bank Logo

This £1million project aims to collect several thousand DNA samples over five years. The resulting information will be used by research scientists as they investigate potential causes of, and possible treatments for, the disease.

How can people help with this research project?

The researchers would like to collect DNA (which will be extracted from a blood sample) from several types of donors; including people with MND, family members and 'control' samples.

To be eligible:

  • you should be a person with MND who experienced their first symptoms after 1 January 2002, OR
  • you should be a person linked to someone with MND who fits the above criteria. 

Research Information sheet I - Participating in the DNA Bank (108kb) explains the background to the project, and for those who are eligible, what the next the next steps should be to participate.

I think I am eligible, what do I do next?

If you would like to talk to someone about the DNA Bank, please call one of the research nurses working on the project, their contact details are given on the DNA Bank Flyer  (49kb) and Research Information sheet I (108kb).

How are the DNA bank samples being used?

At the end of 2006, it was agreed that 1,000 samples from the DNA bank would be used in a whole genome scan project.

How can I find out more?

The Association has published a number of articles on the DNA Bank. The first, in Summer 2003, described the establishment of the DNA Bank (Research article 16 - Banking on MND research (94kb) ). In September 2005, some of the staff working on this research project explained their role (DNA Bank article Autumn 2005 (176 kb) ).

DNA bank- information for researchers