MND Association's DNA bank

In 2003 the MND Association's DNA bank and clinical database programme grant began. It continues to offer people with MND an opportunity to participate in research. In 2011 we anticipate making the samples available to the international research community.

How you can donate a sample to the DNA bank

People with MND, family members and unaffected individuals can participate in the DNA bank by arranging to give a blood sample.


Participating centres and clinicians

The logistics of the collection of samples for the DNA bank is based on a 'Hub and spoke' model.


How to access samples within the Bank

Researchers will be able to apply to the MND Association for access to the DNA bank samples and accompanying clinical information in 2011. We would be happy to receive informal enquiries in the interim.


Genetic studies funded by the MND Association

Projects that we are funding are listed in the Research we fund section of the website. Some of these genetic studies are listed below:

Identifying the genetic cause of MND and fronto-temporal dementia

Identifying DNA targets that may play a role in MND

Next generation gene hunting

What spelling makes the KIFAP3 gene protective to people living with MND?