Site Map

Home Site Map Find a branch Website Policies Jobs Shop Symposium	Life with MND Newly Diagnosed Renewing your plans Is MND Inherited? Progression of MND How will MND affect my everyday life? (FAQ) Everyday Living Personal mobility and movement Speech and communication Children and Young People Eating and drinking Bathing and personal care Clothing and getting dressed Sex and relationships Emotions Travel, Transport and Holidays Work and benefits Driving a vehicle Treatment and Care Symptom control Riluzole Respiratory management Clinical trials and research Flu jabs Complementary therapies Palliative care End of life care Personal Experiences Experiences of MND Amy Brendan Carol Emily Esther Gwen Jeff Joan June's Story Kate Kerry and her mother Rosaleen Leanne Lesley Louise and her mum Jean Lucy Luke's dad - Colin Marcelin Margaret Mark Melvyn Mike My dad Tony My mum Lambrini My sister Karen Penny Peter Prof D Mark Cato Rebecca Richard and his Mam Brenda Sarah Sue Skerrett Tracey David My Mother Cathy Our mum Beryl Victoria Experiences of PMA/PLS Living with PMA/PLS Brian Colin David Drew Jean John Mike Pauline PMA/PLS Support Group Healthtalkonline Hal Bailey Ken Allott Marcelin Fortes Da Cruz Roland Lewis Sarah Ezekiel Terms and Conditions Publications and information Publications for people affected by MND Publications for health and social care professionals We welcome your views on our information for professionals We welcome your views on our care information Books Augie's Quest His Brother's Keeper I choose everything Learning to Fall Memories Never Die My Better Half and Me My Donkey Body Right to Die Rowing Without Oars Selfish Pig's Guide to Caring The sixth lamentation True Love Cruel Fate Tuesdays with morrie The Information Standard	About MND Brief guide to MND Concerned you may have MND? Types of MND Symptoms Tests
Carers Carer's Assessment Financial advice Looking after you Care support Emergency carer schemes Useful organisations for carers Young carers How to get support from ChildLine	Getting Help Services from the MND Association MND Connect Regional Care Development Advisers Association Visitors (AVs) Financial Support Information Health and social care services Local Support Branches Branch Index Channel Islands Guernsey Branch Jersey Branch East Anglia Cambridgeshire Branch Chelmsford and Mid Essex Branch Colchester and North East Essex Group King's Lynn Fundraising Group Luton and South Bedfordshire Branch North Bedfordshire Branch Norwich and Waveney Branch South Essex Branch South Hertfordshire Branch North and East Hertfordshire Branch Suffolk Fundraising Group East Midlands Derbyshire Branch Leicestershire and Rutland Lincolnshire Branch Milton Keynes Branch Northamptonshire Branch Nottinghamshire Branch London East London Development Group North London North West London South London Group West London and Middlesex Branch North East Cleveland Branch Durham, Darlington and Dales Support Group Tyne and Wear Branch North West Blackpool, Wyre and Fylde Branch Central and East Lancashire Support and Fundraising Group Cheshire Branch Furness and District Support and Fundraising Group Manchester and District Branch Merseyside Branch North and West Cumbria Branch North Lancashire/ South Cumbria Branch Isle of Man Branch South Lancashire Branch South East South East East Kent Development Group East Surrey Branch East Sussex Branch Mid Kent Branch North East Hants Branch North West Kent Branch Oxfordshire Branch Portsmouth and South East Hants Group Reading and West Berkshire Branch West Kent Branch West Sussex North Branch South Bucks Branch About Us Events Fundraising South West Surrey Branch Southampton and Winchester Group About Us Events Fundraising Meetings News West Sussex South Branch Windsor and East Berskhire Group South West Cornwall East Dorset & New Forest Gloucestershire North West Devon Support Group North Wiltshire Fundraising Group South & East Somerset South Wiltshire Bristol, Bath, Weston and Winsley Group Exeter and East Devon Branch Isle of Wight Branch Plymouth and District Support and Fundraising Group South and West Somerset Branch Torbay and District Fundraising Group West Dorset Wales Cardiff and Vale of Glamorgan Branch Gwynedd and Ynys Mon Branch Montgomeryshire Branch South East Wales Clwyd About Us Events Fundraising Latest News South West Wales Branch West Midlands Birmingham and Solihull Group Coventry and Warwickshire Group Herefordshire Branch Shropshire Branch Staffordshire Support Group Walsall and Sandwell Group Worcestershire Branch Yorkshire and Humber Grimsby Branch Hull and East Yorkshire Group North Yorkshire Fundraising Group Scarborough Support Group South Humberside Branch South Yorkshire Branch West Yorkshire Branch York MND Unite Support Group Yorkshire Dales Northern Ireland Scotland Branch/Group Websites Care Centres and Community Services Example Care Centre MND Care Centre - Barts and London MND Care Centre - Birmingham - Queen Elizabeth Hospital MND Care Centre - Bristol Frenchay Hospital MND Care Centre - Cambridge - Addenbrooke’s Hospital MND Care Centre - Leeds Teaching Hospital MND Care Centre - Liverpool - The Walton Centre MND Care Centre - London - King's College Hospital MND Care Centre - London - National Hospital MND Care Centre - Manchester - Hope Hospital MND Care Centre - Middlesbrough -The James Cook University Hospital MND Care Centre - Newcastle - Royal Victoria Infirmary MND Care Centre - Northern Ireland - Belfast MND Care Centre - Nottingham - Queen’s Medical Centre MND Care Centre - Oxford - West Wing, John Radcliffe Hospital MND Care Centre - Peninsula MND Network MND Care Centre - Preston - Royal Preston Hospital MND Care Centre - Sheffield - Royal Hallamshire Hospital MND Care Centre - South Wales Care Network MND Care Centre - Southampton General Hospital MND Care Centres Location Search Extra Mile Awards Find out more and nominate Winners to date Useful Organisations and internet sites	Helping Us Campaigning MND Charter Sign the MND Charter 3 Minute Campaign MND Charter E-card See who's supporting the MND Charter Donate Payroll Giving Give in celebration Giving in memory of someone special Become an Oxford Partner BioMOx Study Appeal Christmas Appeal 2012 Donate shares and support the MND Association Gift envelope order form Striving to meet increasing demands Make a monthly donation Communication Aids Service Appeal The DNA Bank screening project Volunteering Association Visitors Becoming an Association Visitor The role of Association Visitors Association Visitor Case Studies Frequently Asked Questions AV Development AV Training Registration Visitor Training Programme Branch and Group Volunteering FAQ's MND Association Trustees Becoming a Trustee - FAQ's Volunteering Case Studies Speaking from experience - Colin Alison's Volunteering Story Following Freddie Godfrey's Volunteering Story Justin Anderson Association Visitor Steven's Volunteering Story Volunteering Enquiry Form Fundraising Get Yourself Involved Running 10K British Road Race Big Fun Run Santa Run Great North Run Great South Run GRIM Challenge London Marathon Royal Parks Half Marathon Silverstone Half Marathon Super Hero Run The Edinburgh Marathon Other Running Opportunities UK Challenges Great Swim Series Jurassic Coast Trek London Stadia Trekathon UK 3 Peaks Open Challenge UK Challenges Yorkshire Three Peaks London 2 Brighton Challenge Mucky Races Thames Path Challenge The Lift Tower Tough Mudder Family Fun Junior & Mini Great Run Series RideIt! - organised cycle rides International Challenges Inca Trail to Machu Picchu London - Paris Cycle Challenge Run España – 100km Challenge 3 Cities Cycle Mont Blanc Massif Pedal to Paris Trek Kilimanjaro 2013 Zambezi Challenge Cycling London to Brighton Cycle Challenge Cycletta Moonriders - Halloween Tour of London Moonriders - London 2 Brighton Moonriders - London 2 Cambridge Nightrider Challenge Ride of Champions Walking Adrenalin Events Parachute Jumps Buy Once Give Twice Ebay For Charity Virgin London Triathlon Walk to Dfeet Walk Finder 2013 Get Your Business Involved Charity of the Year Corporate Partnerships Meet the team Cause Related Marketing Charitable Donations Corporate Events Page Gifts in Kind Payroll Giving Sponsorship Opportunities Mobile Phone and Printer Cartridge Recycling Case Studies Alumet Associated British Ports (ABP) Denmans Everyclick.com GB Railfreight Jenahura Sports Marketing Kettering Park Hotel Kilworth House Hotel Majestic Wine Warehouses Midlands Co-operative Supports the MND Association Northants Cricket chooses MND Association as charity of the year Oldrids & Downtown Department Stores Project Torpedalo Recruitment firm pledges support SAS Group Talk Talk Tesco Distribution Northampton Arden Fine Foods UK Ltd VSG Wilkinson (East) Do Your Own Thing Become a Member 28th AGM Tribute Funds Creating your Tribute Fund Tribute Fund Website Service Tribute Fund Party Invitations Tribute Fund Anniversary Invitations Tribute Fund Celebration Gift Envelopes Leave a gift in your will How to leave a gift in your will Inform us about your gift Raffle 2012 Grantmaking Trusts and Foundations Our Fundraising Promise Becoming a Friend is fast and easy Fightback Funds Application Form Fightback Fund Totals Raffle 2013
News & Events Latest News Features Sam's EP to fight MND A Million Cupcakes for Grandpa Big MND Race Set For Lift Off Neuro Champion Project Three Dads to run the Vanguard Way for MND HRH The Princess Royal attends a reception in support of the MND Charter Volunteers' Week our Association Visitors Validation study of the e-Health Impact Questionnaire Volunteers’ Week MND Association win gold at Chelsea Inherited MND - A new information sheet Our volunteers benefit from BBC Outreach Royal Russell School rallies behind teacher's cause Care Service Navigators Team’s pledge to support vital MND Care Centre Lucky 13 for fundraiser Dave Knowles RCDAs - A wealth of knowledge and experience Tony inspired to swim The Solent London Marathon 2013 Living with MND - A new guide Running to make Mum proud Running to fight MND Reforms Take Effect Running to raise awareness Breathing Problems - Testing Diaphragm Pacing Steve Smith's Rave and Ride Fancy Dress Fundraiser Eyes World Record Improving MND Care Richard Dawson's Big MND Race Sam's Stadium Cycle for MND The NHS shake-up Mark's music raises vital awareness and funds Universal Credit - answering your questions Local stories inspire Sam Wall’s marathon effort Catch a Glimpse of Our Boundary Board MND - a catalyst for connection Grant boosts Dr Bertolotti’s MND research at the University of Cambridge Gary’s Mammoth Marathon Challenge Our volunteers make a difference Finding new meaning through music Something special to give A tribute to a special Dad David Jones battles the elements to raise money HRH The Princess Royal attends a reception in support of the Oxford Centre Stephen’s round the world challenge The Voice in My Head is Perfect Valuation Day with Adam Partridge Events Conferences Annual Conference AGM and Annual Conference 2012 Educational Events Special Interest Groups Study Days Allied Professionals' Forum East Midlands Celebration Event Fundraising Events Fundraising Events Diary Awareness Month 2013 Bake it! David and Holly's Ciabatta I Am Breathing Paul Hollywood's Hot Cross Buns Press Releases 2013 MND Association win gold at Chelsea MND Association fellowships awarded to promising clinicians Progress in the Oxford BioMOx project BBC Radio Oxford on improving services for people living with MND Alistair Banks Disappointment at MND drug trial results John Saunders Stem cell discovery gives insight into motor neurone disease 2012 Association funded researchers identify quadruplex structure in C9ORF72 International Symposium closes in Chicago International Symposium focuses on clinical trials International Symposium focuses on carers and family support International Symposium on MND begins in Chicago Researchers unite at our International Symposium on MND Going the extra mile to take Motor Neurone Disease to the top Teaming up for Universal Children’s Day MND Association volunteer-project receives funding from the Department of Health Encouraging NP001 clinical trial results for MND New Chief Executive appointed NHS Chief Executive under fire from MPs over neurology refusal Coalition government announces cabinet reshuffle Leading medical institutions give the MND Charter their seal of approval Motor Neurone Disease receives national recognition by the NHS in England BBC Sussex & Surrey interview series – A Month for Optimism Opening of MND Care Centre at Frenchay Hospital, Bristol MND Global Awareness Day MBE for volunteer Liz Nelson Awareness Month Channel 4: Alastair Dunwoody on 4thought.tv The race against MND at Silverstone The MND Charter Launch MND Association funded researcher Dr Martin Turner awarded ENCALS Young Investigator Award Meet Team Optimism BBC’s DIY SOS to air Eric’s home make-over Olympic Torchbearers Alistair the Optimist on BBC Breakfast Rugby League club the Warrington Wolves support the MND Association Neurology patients ‘betrayed’ by Government, say charities Raising the bar – Scott’s sporting auction Resignation of Chief Executive MND Association at Downing Street Association-funded stem cell programme achieves milestone MND to be included in NICE quality standards Disappointing news from the UK based lithium clinical trial East Dorset Volunteer Audrey Beall receives MBE Joss Ackland fronts Radio 4 Appeal for the MND Association Professor Stephen Hawking marks 70th Birthday Science Museum marks Stephen Hawking’s 70th Alistair the Optimist’s album available to buy on CD Meeting the needs of people with MND in Wales MND Association calls for Neurology ‘Tsar’ Doctors day-of-action: 21 June 2012 MND Association secures government funding to expand wheelchair service The End the Care Crisis Lobby Banjo Stars get Pickin’ in Bath for Health Charities MND Association Clinical Research Fellowship awarded to Dr Cooper-Knock 2011 Alistair the Optimist on TV Billions of pounds wasted while patients continue to suffer Cricketing family launch The Broad Appeal to beat MND Disappointing results of olesoxime clinical trial announced Headlines from day two of International Symposium Headlines from final day of International Symposium Joss Ackland to front BBC Radio 4 charity appeal Major cause of MND discovered on chromosome 9 Researchers and clinicians gather at world’s largest MND conference Researchers discover common cause of all forms of MND Second gene linked to common process which plays major role in MND 2010 Harnessing the power of stem cells to unlock the secrets of motor neurone disease MND Association funded study finds new clues to genetic causes of MND MND Association PhD studentship draws on scientific advances in stem cell research to increase understanding of MND. MND Association study identifies MND biomarker New clinical fellowship will provide insight into relevance of MND models US lithium trial results published in scientific journal 2009 ‘Protective’ gene increases survival in MND Advertising Standards Authority Finds In Favour Breakthrough in the creation of iPS cells Important news about US lithium trial New gene mutation discovery raises hope in eradicating MND 2008 Boost to MND research: Research fellowships announced Campaigning for embryonic stem cell research Campaigning for the future of MND research Huge advance in MND research Human Fertilisation and Embryology Bill receives Royal Assent Italian clinical trial of lithium in MND MPs give embryonic stem cell research the green light New mutation raises hope for dramatic advances in MND research Remember your flu jab 2007 HFEA defers decision on human-animal egg cells New funds to boost research into Motor Neurone Disease New policy position on human-animal hybrid embryos welcomed New study furthers knowledge of the cause of MND Study explores link between football and Motor Neurone Disease 2006 Claims for Chinese MND stem cell treatment disputed by scientists Email offer of snake venom treatment should be dumped out of inboxes Finger length reveals clue to motor neurone disease Healthy fats and vitamin E may reduce risk of MND New research shows treatment offers better quality of life and longer survival for people with MND Tetra masts and MND - what is the evidence? 2005 HFEA grants licence for stem cell research into MND Human cloning scientist resigns – MND Association statement Human embryo cloned in UK for the first time Media Journalist's Guide to MND Policy Statements Press Contact Details Awareness Campaigns Alistair the Optimist Incurable Optimism Be Social Billboard posters Meet Patrick Patrick’s Portraits I am breathing Sarah's Story Meet the real Sarah Sarah's Story on More 4 News Sarah's Story Poster Campaign Watch the film 2012 News Thumb Print	Research Causes Why Me? Genetic Factors Inherited MND What goes wrong in motor neurones? MND research and you Treatment trials Unproven treatments What makes a good clinical trial? Stem cells and MND Stem cell therapy Stem cell research Get involved in research Experiences of taking part in research TONiC study How has my DNA bank sample been used? Our research Our plan Research we fund Causes Treatments Healthcare Markers of disease progression Models of MND How do we fund research? Our achievements For researchers How to apply for funding Type of grant Biomedical Research Project Grants PhD Studentships Clinical Research Fellows Healthcare Research Grants Clinical and Healthcare Research Summary Applications How we can help researchers MND Association's DNA bank Noticeboard Our governance Statements and policies Grant Application Process Open Access MND Association Open Access Policy More about Europe PMC Symposium Registration Parallel sessions Abstract submissions Milan information Past symposia Research and Care Community Blog	Professionals MND Connect Local Support Care Centres Barts & London Belfast - Royal Hospital Birmingham - Queen Elizabeth Hospital Bristol Frenchay Hospital Cambridge - Addenbrooke’s Hospital South Wales Care Network Leeds Liverpool - The Walton Centre London - King's College Hospital London - National Hospital Manchester - Hope Hospital Middlesbrough Newcastle - Newcastle General Hospital Nottingham - Queen’s Medical Centre Oxford - West Wing, John Radcliffe Hospital Peninsula MND Network Preston - Royal Preston Hospital Sheffield - Royal Hallamshire Hospital Southampton Special Interest Groups UK MND Professional Network For GPs Frequently Asked Questions FAQ - To be alert to the diagnostic possibility of people presenting with a chronic degenerative neurological disease FAQ - To monitor and control their symptoms as effectively as possible using the skills of other health professionals, as and when appropriate, and to co-ordinate their contributions FAQ - To recognise the unique role of the general practitioner from diagnosis to death FAQ - To remain in supportive contact with patients and their families and carers Introduction by Dr Colin Waine Published articles Recommended reading list Useful links Association Resources Just In Case Kit Sharing Good Practice Care Pathway and Clinical Guideline Examples Continuing Education MND Year of Care Pathway MND Year of Care Pathway Request DeNDRoN Online Training Journal Articles Standards Of Care Learning Zone AAC for MND best practice guidelines for professionals For whom are these guidelines? What are the important things to know about AAC intervention in MND? Introducing AAC - where do I start? How do I manage expectations? How do I assess for AAC? What are the common AAC options for people with MND Where can I find more information about AAC systems? What are the funding issues? How do I know if an AAC system is working for the person with MND? MND AAC Case Studies MND-AAC References (July 2012) Useful Links Printed and Online Resources Information Resources
About Us Our vision, mission and values How we make a difference Annual Report and Financial Statement A strategic framework for the future Our Trustees Board of Trustees Reports Board of Trustees - April 2013 Board of Trustees - January 2013 Board of Trustees - October 2012 Board of Trustees - July 2012 Board of Trustees - April 2012 Board of Trustees Report January - 2012 Board of Trustees Report - October 2011 Board of Trustees Report - July 2011 Board of Trustees report April 2011 Board of Trustees - 22 January 2011 Board of Trustees - 16 October 2010 Board of Trustees Report - 10 July 2010 Board of Trustees- April 2010 Our 30th Anniversary How it all began Changes in care over the last 30 years Making it Official Association’s FIRST Chairman Association’s FIRST newsletter Association's first national raffle Association's FIRST secretary Association's FIRST treasurer Attending the FIRST meeting The Formal Constitution The people who took action 30 Volunteers Stories Alun Owen Barbara Phillips Cameron Wilson Caroline Macdonald Charles Reece Colin de'Ath Cynthia Hopkins David Cairns Gerald Carrington Gill Pitt Graham Bassett Gwynneth Mugonyi Hal Bailey Jane Gilbert Janet Oliver Janine Vince Jean Longville Jennifer Mitchell John Hayward Lesley Ogden Luke and Pat Rutter Maimie Davis Mike Cole Olga Bannister Peter Thompson Rosemary Rockett Sheila Lamisere Ted Parr Valerie Hopkins Valerie Pearson 30th Anniversary Xmas Cards Keith Willis Your Memories Holly Norman Louise Small Colin deAth Daphne Riley Sheila Reynolds Jobs Personal Assistant to Directors of Care Research Grants Administrator National Office Other MND Organisations Useful contacts Friends Our Logos Your Feedback	Fundraising