Covid-19 immunisation programme and people with MND

Vaccine scam awareness

During the pandemic, scams have become more complex and may not be easy to spot. They often attempt to steal your bank details. Recently, fraudulent texts about COVID-19 vaccines link to a fake NHS website, which asks for your bank details as 'verification'.  See a BBC report for more information about this and other scams. See also our coronavirus FAQs page for the section: Where can I find advice on avoiding scams?

How the immunisation programme will work

Following UK approval of more than one COVID-19 vaccine, the Government is rolling out an immunisation programme in 'waves', with priority given to those most at risk of complications with the virus. The priority list is shown below and the NHS will let you know when it is your turn to receive a vaccine.

The NHS has stated the vaccines are safe and encourages everyone to receive the immunisation as the best way to protect against COVID-19. Read about the safety of the vaccines on the NHS site or in more detail with the Association of British Neurologists.

Update 18 January 2021:

  • Where there is enough supply and capacity, vaccination will now be offered to waves 3 and 4.
    (Those aged over 70 or clinically extremely vulnerable to COVID-19 – see more about the waves listed below.)
  • If you have MND and you are registered as clinically extremely vulnerable, this means you may receive a vaccination invite soon, regardless of your age.
  • Waves 1 and 2 are still receiving vaccinations and remain the priority.
    (Care home residents and staff, those aged 80 and over, and frontline health and care staff.)

Priority list

The priority list for immunisation was developed by the Government’s Joint Committee on Vaccination and Immunisation. This may change, depending on the availability of vaccines over the coming weeks and months.

The waves will be rolled out as follows:

  1. Residents in care homes for older adults and their carers.
  2. All those aged 80 and over. Frontline health and social care workers.
  3. All those aged 75 and over.
  4. All those aged 70 and over. Or people registered as clinically extremely vulnerable.
  5. All those aged 65 and over.
  6. All people aged 16-64 with underlying health conditions which put them at higher risk of serious disease and mortality.
  7. All those aged 60 and over.
  8. All those aged 55 and over.
  9. All those aged 50 and over.

In which wave will a person living with MND receive the vaccine?

This will depend on three main factors:

  • The person's age.
  • Whether the person is registered as clinically extremely vulnerable.
  • Whether the person is living in a care home.

People over the age of 65:

If a person living with MND is in a residential care home for older adults, they will receive the vaccine in wave 1.

If a person living with MND is aged over 80 years old and is not in residential care, they will receive the vaccine in wave 2.

If a person living with MND is aged 75-79 years old and is not in residential care, they will receive the vaccine in wave 3.

If a person living with MND is aged 70-74 years old and is not in residential care, they will receive the vaccine in wave 4.

If a person living with MND is aged 65-69 years old, is not in residential care and is classed as clinically extremely vulnerable they will receive the vaccine in wave 4.

If a person living with MND is aged 65-69 years old, is not in residential care and is not classed as clinically extremely vulnerable they will receive the vaccine in wave 5.

People under the age of 65:

If a person living with MND is aged below 65 and is classed as clinically extremely vulnerable they will receive the vaccine in wave 4.

If a person living with MND is aged below 65 and is not classed as clinically extremely vulnerable they will receive the vaccine in wave 6.

People with MND do not automatically fall into the earliest waves but will be able to move further up the order by ensuring they are registered as clinically extremely vulnerable. This needs to be done by their GP or specialist. If you have any questions about this please speak to your GP or MND care team in the first instance.

Adult carers

Someone who receives a Carer’s Allowance, or is the main carer to a person who may be at risk if they fall ill, is recognised as an adult carer.

If you are an adult carer, you will receive the vaccine in wave 6. However, when the person you support receives their invitation for the vaccine, there will be a contact telephone number on the letter. This is provided to help arrange the date for the immunisation. When making the arrangement, you could ask if it's possible to have your vaccination at the same time. This may not be feasible, but if you provide essential care, it's worth asking the question.

Family members/households of people who are clinically extremely vulnerable: Family/household members of people who are vulnerable to the virus have not been included in plans for the initial vaccine rollout. This means they will be included in the wave related to their own needs.

Further information

See the option for vaccination on the Gov.uk website to find out the latest information. If you live in Wales you can find out more from Public Health Wales, and in Northern Ireland see their Public Health Agency for regional details.

You can also read about the different vaccines that have been approved in the UK for use against COVID-19. See Gov.uk, as follows:

For more about COVID-19 and support during the pandemic visit our Coronavirus hub

Do I still need to get the flu jab?

Yes. While a flu jab cannot protect against the Covid-19 virus, it will help protect against flu.

The Department of Health advises getting a flu jab if you live with a chronic disease, including motor neurone disease (MND). You may also qualify if you are caring for someone with MND, who may be at risk if you fall ill.

For those most at risk, flu can lead to more serious illnesses including bronchitis and pneumonia. It only takes a minute to get the flu jab each year, but this will protect you for 12 months.

Contact your GP surgery to arrange an appointment. The flu jab is available from the beginning of October every year.

If you would like more advice, contact MND Connect.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262