How we are helping people with MND

In just three weeks the Motor Neurone Disease Association has written to every person with motor neurone disease recorded on the charity's database, launched new ways of working and redeployed staff and volunteers to provide much-needed support.

Staff are now concentrating their efforts on talking to as many people affected by the disease as possible to ensure they have support in place, to offer help and signpost to further support.

When social distancing was introduced in March, the charity acted swiftly. While support group meetings and face to face visits by staff and volunteers had to be stopped, at the same time a plan of action was developed to ensure support was still available for people affected by the disease.

With the vast majority of staff now working from home, the charity has turned its attention to offering support to people with MND and their carers using various technology including phone calls, emails and online meeting platforms,

By the middle of April, the Assocation had:

  • Written to all 4,108 people with MND on its database offering support
  • Called 50% of people with MND whom they had permission to phone
  • Utilised 269 volunteers to engage with people affected by MND
  • Upskilled volunteers to use technology to replace face to fact contact at the current time
  • Identified potential future gaps in care centre work as a result of NHS redeployment enabling work to start on increasing support as necessary

Director of Care Improvement for the Association, Nick Goldup, said:

“I am very proud of all the staff and volunteers at the Association whose focus has not wavered from providing support to people affected by MND during the pandemic. Their willingness to adapt, learn new skills and take on new responsibilities is allowing us to continue our vital support at the same time as working with stakeholders to anticipate what needs to happen next.”

  • Page last updated: 01/05/20

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262