Publication dates

Please see below for the publication and revision dates of our information for people with and affected by MND.

Guides and introductory information

Publication Version number Last updated Next update
MND: How to find out more 1 03/16 03/19
Living with MND 1 08/16 08/19
Understanding my needs

Understanding my needs (Interactive)

2

1

01/16

01/16

01/19

01/19

MND Checklist 1 01/16 01/19
An easy read guide to motor neurone disease 2 07/14 07/17
An introduction to MND 2 09/14 09/17
Caring and MND: quick guide 1 06/16 06/19
Caring and MND: support for you 1 01/16 01/19
When someone close has MND: a workbook for children aged four to ten 1 08/16 08/19
So what is MND anyway? 1 03/16 03/19
Making the most of life with MND  1 11/17 11/20
Eating and drinking with motor neurone disease (MND) 1 02/17 02/20
End of life: a guide for people with MND 1 09/17 09/20

Information sheets

Publication Version number Last updated Next update
1A – NICE guideline on MND 4 06/16 06/19
1B – Information about MND or Kennedy’s Disease in other languages or Braille 3 06/15 06/18
1C – Where can I find the information I need?
1 08/17 08/20
1D – How we may use your information 1 01/17 01/20
2B – Kennedy’s disease 4 06/15 06/18
2C – Primary lateral sclerosis 3 10/15 10/18
2D – Progressive muscular atrophy 2 01/17 01/20
3A – MND care centres and networks  5 03/15 03/18
3D – Hospice and palliative care 1 08/17 08/20
4A – Communicating about MND with children and young people 2 08/16 08/19
5A – Riluzole
1 02/17 02/20
6A – Physiotherapy 3 08/16 08/19
6B – Complementary therapies 4 05/15 05/18
7A – Swallowing difficulties
2 01/17 01/20
7B – Tube feeding 7 03/15 03/18
7C – Speech and communication support 5 05/16 05/19
7D – Voice banking 1 06/17 06/20
8A – Support for breathing problems 4 01/15 01/18
8B – Ventilation for motor neurone disease 4 01/15 01/18
8C – Withdrawal of ventilation with MND 1 07/17 07/20
8D – Troubleshooting for non-invasive ventilation (NIV) 4 01/15 01/18
8E – Air travel and ventilation for motor neurone disease 5 01/15 01/18
9A – Will the way I think be affected? 3 07/15 07/18
9B – How do I support someone if the way they think is affected? 3 07/15 07/18
9C – Managing emotions 3 07/15 07/18
10A – Benefits and entitlements  1  10/17 04/18
10B – Direct payments and personalisation 4 05/15 05/18
10C – Disabled Facilities Grants 4 04/15 04/18
10D – NHS Continuing Healthcare 8 04/15 04/18
10E – Work and motor neurone disease

Currently under revision

4 08/14 08/17
10F – Your rights to social care 2 02/16 02/19
10G – Support for families with children 1 06/17 06/20
11A – Clothing  1  08/17 08/20
11B – Mouth care  5 03/15 03/18
11C – Equipment and wheelchairs 5 05/16 05/19
11D – Managing fatigue 2 11/16 11/19
12A – Driving 3 08/16 08/19
12B – Choosing the right vehicle 3 08/16 08/19
12C – Travel and transport 3 04/16 04/19
12D – Planning a holiday 3 04/16 04/19
13A – Sex and relationships for people with MND 2 04/16 04/19
13B – Sex and relationships for partners of people with MND 2 04/16 04/19
14A – Advance Decision to Refuse Treatment (ADRT)

Currently under revision

4 08/14 08/17
14B – Bereavement support

Currently under revision

 8 09/13 09/16

 

Tell us your thoughts on the About MND area of the website  information-standard-small Page last updated: 11/17
Next review: 05/19

For further information and support, contact our MND Connect helpline:
MND Connect logo MND Connect Phone Number - 0808 802 6262

See our online forum for support and sharing with others affected by MND:
MND Forum logo

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