Home About MND Where do I start? Where can I find the information I need?

Where can I find the information I need?

Where next

Our support Further support

“Having the information to gain the resources you may need is invaluable and could save time, money, distress and confusion.” Person affected by MND

If you have been diagnosed with MND or Kennedy’s disease, this page can guide you to appropriate resources to help you access suitable support. We also provide this guidance in an information sheet, on our Information for people with or affected by MND page. Finding appropriate information is important, as needs can change quickly. If you need further help, contact our MND Connect helpline. Use the buttons above, or move through the sections below to find out more.

Our support

The MND Association supports anyone living with or affected by MND or Kennedy’s disease, in England, Wales and Northern Ireland.

Our information Our services

Our informationTwo women reading and talking about our Carers' guide

We provide a wide range of  information resources. You are unlikely to have exactly the same symptoms in the same order as someone else, so you don’t have to read everything at once. Return to our information as and when needed. Select from the following to find out more.


Introductory information
Detailed information and resources
Online forum and social media

Our servicesA road map showing all the MND Association services that can help someone living with or affected by MND.

“When I was diagnosed, I had no knowledge of MND. A friend gave me your number. It was the most important call of my life.” Person with MND

We provide a number of services to support people living with and affected by MND or Kennedy’s disease. Select from the following to find out more. Click the image to see our road map detailing MND Association services that can help you. Or watch our video below.

Video - How can the MND Association help you?
MND Connect helpline
Regional services
MND care centres and networks
Support services
Communication aids and wheelchair services
Benefits advice service
Membership with the MND Association

Further supportA healthcare professional talking to a person with MND and their carer

There are many organisations and services that provide support and information. Select from the following organisations and services to find out more.



NICE Guideline on MND
Social care
Benefits, finance and work
Low cost apps
Useful organisations
Tell us your thoughts on the About MND area of the website  information-standard-small Page last updated: 08/17
Next review: 05/19

For further information and support, contact our MND Connect helpline:
MND Connect logo MND Connect Phone Number - 0808 802 6262

See our online forum for support and sharing with others affected by MND:
MND Forum logo

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