Siobhan Rooney – Honorary Chair of Care Committee

During my career I have worked as a Nurse, Midwife and Health Visitor in Acute, Community and Primary care settings. I have also worked at senior management positions in the Health and Social Care Trusts and Department of Health in Northern Ireland (NI). I also trained and worked as a reviewer with the former Commission for Healthcare Improvement (CHI) and participated in health care reviews in England and Wales. I have an extensive range of skills and experience of Health and Social care provision, corporate governance, risk management and accountability.

I have held a number of Board Chair and Non-Executive Director positions in the Statutory and Voluntary Sector. Currently I serve as Non-Executive Director on the Southern HSC Trust Board and Chair the Endowments and Gifts subcommittee of Trust Board with responsibility for ensuring effective governance of publically donated monies and all aspects of charity and company law.

I am passionate about the need to find a cure for MND and want to use my experience, knowledge and background to help improve the care people living with MND receive and have access to the services that they need to enable them to fulfil their day to day living activities and maintain their quality of life.

My personal experience of MND includes caring for my late husband Martin who had bulbar MND. After Martin died in October 2009 I joined the Northern Ireland Branch, there I met a wonderful group of very dedicated and committed volunteers. Shortly after joining the NI branch I became an Association Visitor and am now the NI branch contact, I also represent the Association as member and Vice Chair of the Northern Ireland Neurological Charities Alliance (niNCA) a regional strategic alliance of neurological charities that represent individuals living with a neurological condition.