The Board of Trustees is a group of volunteers which takes overall responsibility and acts collectively to govern the Association.
They are responsible for ensuring the mission and long-term aims of the MND Association are met. Trustees have a legal responsibility to ensure the Association is complying with current legislation and governance best practice.
Could you be a Trustee? Nominations are now open. Find out more.
Take a look at the most recent Board of Trustee reports.
Our current Trustees are as follows:
Alun Owen – Chair
Charlotte Layton – Vice Chair
Richard Coleman – Chair Elect
Tim Kidd – Honorary Treasurer
Susan (Sue) Edwards
Dr Nikhil Sharma
Charlotte is the Deputy Director of HR at an NHS mental health and community services trust.
Her experience of MND has been gained through her best friend, whose father was diagnosed in 2013.
Since then, she has campaigned to raise awareness and funds for the MND Association. Charlotte brings extensive HR, health and social services management skills to the role of Trustee for the Association.
Emma has worked in the public and private healthcare sectors for 28 years holding various clinical and commercial roles.
She was a Senior Nurse in the NHS specialising in intensive care for 12 years and worked for 16 years in sales and marketing across both healthcare and pharmaceutical businesses.
Emma’s husband Simon has MND and they have a six year-old son who is able to recall how MND has changed his father.
Steve was diagnosed with MND in 2015. He worked in further and higher education before entering the welfare to work sector.
He is currently a motivational employment coach and volunteer. Steve is a lifelong campaigner and a parliamentary candidate at the last two general elections.
Siobhan trained as a Registered Nurse, Midwife and Health Visitor.
She worked in senior management positions for HSC Trusts and DHSSPS in Northern Ireland before her current roles serving as Non-Executive Director on the Southern HSC Trust Board and Chair for the Endowments and Gifts subcommittee of the Trust Board.
Siobhan’s husband died of bulbar MND in October 2009. She is a member of the Northern Ireland Branch Committee, a Branch Contact, and an Association Visitor.
Katy is a nationally recognised health campaigner who has been particularly successful in highlighting the financial support disabled people and their carers need.
She has volunteered with the East Kent Group for five years and three as a Campaigns Contact. Locally, she has influenced decision makers including politicians, commissioners and individual healthcare professionals to help improve access to health and care services.
Katy’s husband Mark, has Kennedy’s Disease which has similar traits and impacts to MND.