The Motor Neurone Disease (MND) Association was established in 1979 by a group of families affected by the disease. With little information, co-ordinated care or support available they felt ‘isolated’ and utterly ‘helpless’. They were ‘in the dark’ and aimed to fill the void of care and support and encourage research into the disease.
40 years on the Association funds the co-ordination of life-changing care for people living with MND, and wide-ranging support for families and carers. We also invest around £15.5 million in a global research effort to discover causes, potential new treatments and ultimately a cure.
We marked 2019 as an Association with a relentless commitment to people living with MND, underpinned by a fresh optimism that together we will deliver our vision of a world free from MND.
We know so much more about MND today and our research focus now is to take that knowledge gained globally into clinics, to find potential new treatments for everyone affected by MND.