On Sunday 21 June, like MND/ALS communities across the world, we will mark Global MND Awareness Day

Now more than ever, with the world in the grip of a global pandemic, we want to reach out to the thousands of people across the world who are living with motor neurone disease.

In these difficult times, we can't hold each other's hands. But we can be there for each other, offering a hand of friendship, kindness, support, knowledge, love, and thanks.

For more than 40 years, the MND Association has been doing just that. Yet it's more important now than ever.

In the three months since the start of the pandemic the MND Association has:

  • Spoken to 3,378 people with MND. Almost half have asked us to stay in touch
  • Supported almost 60 people affected by MND totalling around £12,500 through our emergency grant scheme.
  • Created an online Coronavirus information hub, providing a one-stop shop to answer questions and explain our work in this area
  • Launched a campaign urging the government to recognise people with MND as among those who need shielding as ‘extremely vulnerable persons’

View our infographic

Now the Association would like to extend a hand of thanks on this #GlobalMNDAwarenessDay to:

  • 240 volunteers who have spent time during lockdown ringing people affected by MND to offer support
  • 500 people who have signed up for a virtual event since lockdown began
  • 4,680 fundraisers who give to us on a regular basis as well as the almost 4,000 people who have donated to the emergency appeal
  • 6,290 people who joined our #GetMNDOntheList campaign
  • Our 10,000 members
  • Our legacy pledgers, community fundraisers, corporate partners, trusts, foundations and high profile supporters


Key Facts about MND

• MND is a fatal, rapidly progressing disease that affects the brain and spinal cord.

• It affects people from all communities.

• It kills a third of people within a year and more than half within two years of diagnosis.

• A person’s lifetime risk of developing MND is around 1 in 300.

• It kills six people per day in the UK, just under 2,200 per year.

It has no cure.

Extend a hand of commitment and become a Cure Finder today...

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Share your story on Twitter, Instagram and Facebook, using #HandOf or email digital@mndassociation.org and we'll share your news with our community.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262