Review of regional roles

The Responsive project was designed to review regional roles to ensure that the Association is consistently able to provide access to the best possible care and support to people with and affected by MND and Kennedy's disease.

It focussed on the regional roles within care, volunteering and campaigns to ensure that they met the needs of people with and affected by MND, volunteers and Health and Social Care Professionals and the Association can make the best use of limited resources.

Building on the work completed in the first two stages of the project, consultation with staff and input from stakeholders the new structure was finalised in December 2019 and implemented in January 2020 with further recruitment being undertaken during March and April.

As a result of COVID-19 it has not yet been possible to fully test the new structure but the flexibility it has created has been invaluable in responding to the pandemic. However, over the course of the next few months we will be starting to review the structure.

We would like to involve stakeholders in this process and would be interested in your views and experiences. Please do drop us a line if you have any thoughts, observations, ideas or comments -

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262