Responsive is a new initiative designed to ensure that the Association is consistently able to provide access to the best possible care and support to people with and affected by MND and Kennedy's disease. Its main focus is to look at the regional staff roles generally and specifically those within care, campaigns and volunteering to ensure that they meet the needs of people with and affected by MND, volunteers and Health and Social Care Professionals and we can make the best use of limited resources.

Working with staff, volunteers, people with and affected by MND and Kennedy's disease and other stakeholders we have spent some time gathering views on the tasks and responsibilities that should be undertaken, those that should not and what our priorities should be. As a result a number of customer journeys have been mapped.

Documenting the different journeys has been challenging and to make them manageable they have been set out both in outline and in more detailed forms. Looking at the outline form will give you a good general idea but the more detailed form may be needed to bring the outline alive.

Next steps

Over the next few weeks we will be using the customer journeys and the feedback received on them to start to work out the new or revised roles that may be needed moving forward. Please contact the team if there is anything that you would like to discuss in more detail -

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262