Review of regional roles
The Responsive project was designed to review regional roles to ensure that the Association is consistently able to provide access to the best possible care and support to people with and affected by MND and Kennedy's disease.
It focussed on the regional roles within care, volunteering and campaigns to ensure that they met the needs of people with and affected by MND, volunteers and Health and Social Care Professionals and the Association can make the best use of limited resources.
Building on the work completed in the first two stages of the project, consultation with staff and input from stakeholders the new structure was finalised in December 2019 and implemented in January 2020 with further recruitment being undertaken during March and April.
As a result of COVID-19 it has not yet been possible to fully test the new structure but the flexibility it has created has been invaluable in responding to the pandemic. However, over the course of the next few months we will be starting to review the structure.
We would like to involve stakeholders in this process and would be interested in your views and experiences. Please do drop us a line if you have any thoughts, observations, ideas or comments - firstname.lastname@example.org.
The new structure creates three main new regional roles, replacing the RCDA, VDC and local campaigns roles.
Area Support Co-ordinator (ASC) focuses on supporting, managing and leading volunteers to ensure that the best possible support is provided to people affected by MND, resolving local issues and developing and maintaining local relationships with Health & Social Care Professionals. This role works closely with group and branch volunteers and support volunteers, including AVs. It covers a distinct geographical area.
Service Development Manager (SDM) focuses on improving and developing services to ensure that better outcomes are achieved for people affected by MND, and on managing the resolution of complex issues for people with and affected by MND. It covers a distinct region or part of a region but works across other regions as required.
Senior Campaigns Adviser (SCA) focuses, as part of its remit, on designing and managing campaigns to support Service Development Managers in improving and developing services, managing, supporting and directing the work of campaign volunteers and working to ensure that national campaigns are delivered locally.
The ASC and SDM roles report to a Head of Region (HoR), a new name for the Regional Delivery Manager role with the SCA role reporting to the Campaigns Manager. Two further roles have been created: Education Co-ordinator (EC) and Policy and Public Affairs-Wales (PPAW). They report to the Head of Education and Information and the Head of Policy and Campaigns respectively.
For more detailed information: