Association launches new resources for children
The MND Association has developed two key resources for young children in response to demand from families affected by motor neurone disease. Children affected by MND, parents and healthcare professionals have been consulted throughout development.
MND Buddies is a new online activity hub developed to give children aged 4 to 10 the chance to learn more about MND through games, stories, activities and galleries where they can share artwork and writing. The hub is brought to life by a team of friendly characters – Max the Monkey, Rini the Rabbit, Eric the Elephant, Carly the Cat and Ali the Alligator.
MND Association care information manager Kaye Stevens said:
“We are so proud to be launching these new resources to extend the support we offer. Families face such a difficult time following a diagnosis of MND, which can affect how people move, talk, eat, drink and breathe. For some it can even affect thinking and behaviour. The impact can be very hard for children to understand, but MND Buddies and our storybook gently introduce some of the changes they may see. This can help children feel more involved and build resilience for the challenges ahead.
“We have worked closely with families affected by MND who have told us these resources can really help to ease communication about MND.”
There are also three family-based stories on MND Buddies, helping children to begin to adjust to some of the changes MND will bring. The aim is to encourage children to discuss worries with their family. The stories can be read and listened to on the hub, allowing people with MND who have communication difficulties to share the stories with children.
The stories are also available in a printed storybook called Why are things changing? which can be ordered free from the MND Association.
“It shows that there is always someone to talk to and help you through the hard times.” Young family member
You can order the printed storybook from our MND Connect helpline:
Telephone: 0808 802 6262
Our thanks to the families and experts who assisted and to the Mountbatten Memorial Trust and Anton Jurgens Charitable Trust for their generous support.