A carer’s assessment enables you to tell adult social care services how they can make caring easier for you. You should be offered an assessment as soon as you have been identified as a carer. If not, you can ask your local authority for an appointment or, in Northern Ireland, your local health and social care trust.
The assessment does not judge your capability as a carer, but allows you to review your caring role and the help you may require.
You have the right to ask for a carer’s assessment whether or not you live with the person you support. You may provide care full-time or part-time, or combine care with paid work.
Your circumstances, income and the number of hours in which you provide care may affect your eligibility for specific services and support, but an assessment will help you to find out about:
- statutory care services, benefits advice and voluntary sector services
- planning for respite or emergency care
- assistance with travel
- suggestions for counselling or support groups.
Detailed guidance on carer’s assessment is given in our comprehensive guide for carers:
This can be downloaded in full or you can look at just the section you need. If preferred, we have a short booklet for carers:
Caring and MND: quick guide.
The full guide and the quick guide can also be ordered in print from our helpline, MND Connect.
The full guide includes advice on your rights as a carer and the relevant Acts and Orders that govern this legislation.
In brief, as a carer you have the right to:
- have your views taken into consideration by the local social services/adult care services when they are assessing the needs of the person you support
- an assessment of your needs as a carer
- have your interests, work, family life and life ‘outside of caring’ taken into account
- take a break from caring
- benefits and financial support, where applicable
- request flexible working from your employer
What should you expect from your care?
Our pocket sized booklet can support discussions with health and social care professionals. This may help lead to better outcomes for treatment and care with MND and contains the main points from the NICE guideline on motor neurone disease. This includes help for carers. NICE guidelines are produced by the National Institute of Health and Care Excellence, providing recommendations to help professionals support specific conditions, such as MND.
You may wish to contact our helpline MND Connect if you have any specific questions.