Looking after you
It is very important to take care of your own needs as well as the person you support, but this can be difficult as a carer. In extreme circumstances this could result in a situation where you are no longer able to continue your caring role, even if this is still your wish.
Don’t expect to shoulder everything alone – no-one can be on the go 24 hours a day, seven days a week. Staff in care homes and hospitals share care and go home at the end of their shift, so don’t feel guilty about asking for help.
Ensuring that you eat well, have breaks from caring and can recognise signs of stress are all important.
You can find out more about support for carers in our comprehensive guide:
The guide includes information on:
- making sense of your feelings
- looking after your own needs and wellbeing
- support beyond the caring role
This can be downloaded in full or you can look at just the section you need. If preferred, we have a short booklet for carers:
Caring and MND: quick guide.
Both the full guide and the quick guide can be ordered in print from our helpline, MND Connect. The team can also help with specific concerns, questions about external care services or just listen if you need to talk.
What should you expect from your care?
Our pocket sized booklet can support discussions with health and social care professionals. This may help lead to better outcomes for treatment and care with MND and contains the main points from the NICE guideline on motor neurone disease. This includes help for carers. NICE guidelines are produced by the National Institute of Health and Care Excellence, providing recommendations to help professionals support specific conditions, such as MND.