Home Carers Young people aged 11 to 18 Information for children and young people

Information for children and young people

Children and Young People - Information squareIf someone close to you has been diagnosed with MND, you may want more information about what to expect. Our information may help answer your questions.

So what is MND, anyway?

Children and Young People - So what is MND, anywayIf you are aged up to 18, our guide So what is MND, anyway? can help you find out about the disease. It may help you get support, if you are helping with care tasks.

If you’d like a printed copy of the guide contact Young Connect, as shown at the bottom of this page. You can also download the guide by clicking on the image or using the following options:

Web app

This works like an app from an app store. It can be read on a wide range of mobile devices, smart phones and tablets. It is free to use and best to download when you are on Wi-Fi.  It will use about 5MB of space. You can save it to your mobile to use whenever you want (If downloads are not covered in your mobile contract, you may be charged).

Open web app

Notes pages
You can download the notes pages from So what is MND, anyway? to help you write down any questions and thoughts about MND. Save them to your computer or tablet by clicking the button below.

Download notes pages


This will help you read the entire guide online. This works best on a computer or laptop.

Download PDF

Let us know what you think about the guide. You can tell us using our feedback form.


Workbook for 4 to 10 year olds

Children and Young People - 4-10's workbook coverWhen someone close has MND: a workbook for children aged 4 to 10

If you have younger sisters and brothers, this workbook may help them find out about MND and work out ways to cope with their feelings. They will need an adult to help them use it.

It is not available online. An adult can order it from mndconnect@mndassociation.org


Reading lists for children and young people

Our reading lists may be  useful if you’re close to someone with MND. Let us know if you find something other children and young people would find helpful. Choose a list and click to open.

A reading list for young peopleStack of books

A list for children under 10

A list for children and young people with additional needs

A list for parents to help with conversations about loss

Contact us

If you’d like to order any information, share ideas or ask a question, contact our Young Connect helpline.

For guidance about MND, contact Young Connect:
Question MarkHelpline: 0808 802 6262
Email: youngconnect@mndassociation.org

For 24-hour emotional support, up to the age of 19, contact:
Childline logoHelpline: 0800 1111
Website: www.childline.org.uk

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