Home Carers Young people aged 11 to 18 Support for children and young people

Support for children and young people

Children and Young People - Young person talking to peerIf you are aged 11 – 18 and someone close to you has been diagnosed with motor neurone disease (MND), you may be worried about the way things are changing.

You may live with them or nearby. You may help with a few tasks or you may be their main carer at the same time as going to school or work.

Whether you help with care or not, you are NOT alone.

Young Connect

If you want to find out more about MND, how to get support, or just talk, contact Young Connect. This service is part of our helpline. The team can  give you information about other services and organisations that support children and young people.

For guidance about MND, contact Young Connect:
Question_Mark_1 smallHelpline: 0808 802 6262
Email: youngconnect@mndassociation.org

Young Person’s Grant

Children and Young People - SunWe offer grants to help young people close to someone with MND. Up to £250 can be awarded to a young person in any one year. You can use the grant in lots of ways. For example, to help pay for:

  • a laptop or smartphone
  • a day out with your family to build a special memory
  • decoration of your room to create a calm environment

A member of your family or a health and social care professional can apply for a grant on your behalf. Or you can contact our Support Services team yourself:

Telephone: 01604 611802
Email: support.services@mndassociation.org

Useful contacts

Emergency Contact details

Emergency Services – Tel: 999
For ambulance, police or fire services.

Urgent health advice in England – Tel: 111
For urgent, but non-emergency health advice.

Urgent health advice in Northern Ireland
This online page will help you find out-of-hours medical guidance.

Urgent health advice in Wales – Tel: 0845 46 47
For urgent, but non-emergency health advice.

Emotional support

Childline – Tel: 0800 1111
24-hour emotional support, offering confidential live chat.

Get Connected
A helpline service for young people under 25.

Hope Support Services
Online emotional support for children and young people aged 11 and over facing a family health crisis offering Skype, email, one to one and peer support.
Telephone: 01989 566317
Email: help@hopesupportservices.org.uk

iRelate – Tel: 0300 100 1234
Email: irelate@relate.org.uk
Online emotional support and advice.

Online chat with qualified counsellors

Student Minds
Emotional wellbeing support for students.

Young Minds
Mon- Fri 9.30am – 4pm 0808 802 5544
Email: ymenquiries@youngminds.org.uk
Support for the emotional wellbeing and mental health of children and young people.

The Mix
An online guide to life for 16-25 year-olds in the UK, offering non-judgemental support and information.

Support for young carers

Carers Trust
Email: support@carers.org to find out about the Young Carers Festival and local young carers groups.

Chicks – Tel: 01822 811020
Email: info@chicks.org.uk
Free respite breaks for disadvantaged children, including young carers, from all over the UK.

The Children’s Society – Tel: 0300 303 7000
Help for young carers with details of young carers’ groups on the website.

Paul’s Fund – Tel: 01271 891 076 or 0779 398 0760
Email: pauls-place@pauls-fund.co.uk
Grants for children and young carers to have time away at Paul’s Place, in Georgeham, North Devon.

Bereavement support

Winston’s Wish – Tel: 08452 03 04 05
Support for bereaved children, young people and their families.

Child Bereavement UK – Tel: 0800 02 888 40
Email: support@childbereavementuk.org
Support to help families rebuild their lives when someone close to them dies.

Hope Again – Tel: 0844 477 9400
Email: helpline@cruse.org.uk
Support, advice and information for children, young people and adults when someone close to them dies.

Grief Encounter – Tel: 0208 371 8455
Email: support@griefencounter.org.uk and ecounselling@griefencounter.org.uk
Bereavement support for children and young people

For guidance about MND, contact Young Connect:
Question MarkHelpline: 0808 802 6262
Email: youngconnect@mndassociation.org

For 24-hour emotional support, up to the age of 19, contact:
Childline logoHelpline: 0800 1111
Website: www.childline.org.uk

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