Publications for health and social care professionals
These resources have been developed to help health and social care professionals who are caring for people affected by motor neurone disease (MND).
All publications are evidence based and reviewed by clinicians. They are regularly revised and correct at time of print.
Information for download
The following items can also be ordered in hard copy by calling MND Connect on 0808 802 6262.
Motor neurone disease – a guide for GPs and primary care teams (729kb)
Endorsed by the Royal College of General Practitioners (RCGP), this publication aims to help health and social care professionals provide care and support to people with MND. It includes information about symptoms, aetiology and treatment. (Code: PX016)
Motor neurone disease in acute urgent and emergency care (324kb)
A succinct guide for emergency care professionals, including ambulance staff, on actions to take and things to consider when treating a person with MND. (Code: PX017)
Cognitive change, frontotemporal dementia and MND (398kb)
This booklet contains information on cognitive and behavioural change and dementia, and practical tips on management. (Code: PX018)
Caring for a person with motor neurone disease: a guide for care workers (555kb)
This booklet is designed to give paid care workers information and practical tips on the care of someone with MND. (Code: PX011)
Supporting children and young people close to someone with MND (628kb)
This booklet is for any professional working with children or young people who have a parent, guardian, grandparent or close relative with MND. This includes teachers, school nurses, youth workers and social workers. (Code: PX031)
A professional’s guide to end of life care in MND (410kb)
A booklet to help health and social care professionals to support people affected by MND with end of life concerns. (PX012)
Head supports for people with motor neurone disease – information sheet P1 (990kb)
Guidance on head and neck supports for people with MND. (Code: P1)
Wheelchairs for people with motor neurone disease – information sheet P2 (387kb)
Information about access to wheelchair services and the types of wheelchairs recommended for people with MND. (Code: P2)
Managing saliva problems in motor neurone disease – information sheet P3 (394kb)
Strategies and treatment options for managing saliva problems experienced by people with MND. (Code: P3)
Providing medical evidence for benefit applications made by people with MND – information sheet P5 (386kb)
Guidance for health or social care professionals who may be asked to provide medical evidence to support a claim for disability/employment benefits made by someone with MND. (Code: P5)
Evaluation and management of respiratory symptoms in motor neurone disease – information sheet P6 (406kb)
Guidance for health professionals on respiratory symptoms in relation to MND. (Code: P6)
Dysphagia in motor neurone disease (MND) – information sheet P8 (435kb)
Endorsed by the British Dietetic Association, this information covers evaluation and management of swallowing problems. (Code: P8)
Oral suction – information sheet P9 (372kb)
Information about oral suction for secretion management.
MND Association care posters
We have a range of posters about the care support offered by the MND Association, available to download in English or Welsh.
Red Flag tool for diagnosis
We’ve worked with The Royal College of General Practitioners (RCGP) to create a Red Flag tool for MND, which is designed to improve timely referrals to neurology and therefore speed up the time to accurate diagnosis.
You can also download or order the Red Flag tool in tool Welsh.
The following items are available in hard copy only by calling MND Connect on 01604 611870.
Motor neurone disease: how to find out more
An introductory leaflet providing a basic outline of the disease, our services at the Association and the publications we can provide. This can be ordered to give out to people affected by MND.
DVD: Management of respiratory insufficiency in MND (NIV)
The DVD aims to improve knowledge, understanding and practice in relation to respiratory management in MND. It comes with relevant information sheets and notes on NICE guidance for non-invasive ventilation (NIV) and MND.
A credit-card sized tool to carry with you, to assist when checking respiratory symptoms for people with MND.
Caring and MND: support for you
A comprehensive guide for family and unpaid carers who support someone living with MND. This guide is free to order, but a charge of £5 per copy (plus postage and packaging) applies if ordering in multiples or for other conditions.