Champion the MND Charter
Lorraine’s Story – watch this short film showing one supporter’s journey to get her local council to adopt the MND Charter.
Join our campaign and ask your council to champion the MND Charter and make a difference to people living with MND in your community.
Find out how you can get involved by visiting our campaign website – www.mndcharter.org.
Why we are campaigning
Until there is a cure for MND, what matters most is that people with MND receive the right care, in the right place at the right time. This is the vision of our MND Charter.
The Champion The Charter campaign calls on councils to adopt the MND Charter to help positively influence the lives of people living with MND and their carers in their community.
Councils play a key role in delivering a number of the points within the MND Charter and our campaign will help ensure councils are better informed and understand the needs of people with MND.
We are encouraging supporters to speak to their local councillors about MND and ask them to encourage the council to adopt the MND Charter.
Why this campaign matters
Lord Porter of Spalding CBE, Chair of Local Government Association (LGA), said:
“Only those people who suffer from or care for someone with Motor Neurone Disease really know the impact it has on everyday life. It is crucial that access to local services and specialist support is readily available to those that need it.
“The Charter and the campaign to champion the Charter are great examples of how those people with the knowledge and experience have been able to help show the rest of us what we can all do, in our own small way to ease some of that impact.”
Chris Manns, son of Kim Manns who lost his battle to MND in 2015, said:
“The proudest moment of my father’s life came when Portsmouth City Council agreed to adopt the MND charter pledging to support patients after he called for the move. This was really important to him as he knew it was something he could do to help make a real difference.”
Heather Smith lives in Swindon, Wiltshire and became a Campaigns Contact volunteer for the Association in 2013 following the death of her partner, Steve, who had MND.
Heather said: “It was so satisfying to know that we have made a real difference to the council’s level of knowledge about MND and that they have made a clear public commitment to people living with the disease, their families and carers.”
Colin Hardy is from Northumberland and joined the Association as a volunteer Campaigns Contact volunteer in 2014 following the death of his sister Pauline, who had MND.
Colin said: “I first approached Berwick-upon-Tweed Town Council in 2014 and asked them to support and adopt the MND Charter. Asking councils to adopt the Charter was so important to me, not only as a way to raise awareness of MND, but also to highlight the issues and difficulties that people living with MND in Berwick were facing.”