APPG inquiry into specialist palliative care for people with MND

The APPG held a public inquiry into access to specialist palliative care services for people with MND living in England. This was the first inquiry to be held by the Group.

Evidence was collected from a wide range of individuals and professionals including people with MND, past carers, neurologists, palliative care consultants, hospices and charities. Members from the APPG on MND also heard people’s own experiences and accounts of the services during four evidence sessions held at Westminster.

The report found that access to services is patchy, services are fragmented and funding is under pressure. Access to palliative care remains a postcode lottery for many people with MND, with some people living with MND receiving excellent palliative care, whilst many others do not.

The final report, which you can download here, was published in June 2011

It is hoped that the recommendations outlined in the report will help to reduce the amount of suffering endured by people with MND and, in the face of a significant squeeze on NHS budgets, deliver value for the public purse.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262