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Cost-of-Living crisis

Over 100 of you completed the cost-of-living survey. Thank you for helping us understand how the cost-of-living crisis is impacting you.

With energy bills rising and everyday goods getting more expensive, the rising cost of living continues to be a serious issue for many across the country. We are concerned that people with MND may well be disproportionately affected by this crisis, as we know from our research that they are already paying thousands of pounds each year for support, specialist equipment and more.

Your stories

While the cost-of-living survey has now closed we are still welcoming personal stories to show the real-life experience behind each statistic. These stories are vital to the work we do, helping to illustrate the scale and impact of the crisis on people with and affected by MND.

If you would like to share your story and experiences, we will be available to listen sensitively. Please contact us for more information.

Working with others

Over the past year we have joined our voice with many other charities at Westminster calling on the Government to help those affected by the cost-of-living crisis.

Together with these groups we wrote to the Chancellor, Jeremy Hunt MP detailing the impact of the crisis and calling for key benefits to rise in line with inflation. In November's Autumn Statement, the Chancellor confirmed that this rise would go ahead, preventing a real-term loss of income for many people affected by MND.

Next steps

Now the survey has closed and we'll be reviewing what you've told us. We'll share some headlines here, along with ways for you bring them to the attention of decision-makers and take action on the wider crisis.

More information

For more information from the Association about managing your cost-of-living challenges please see our information page.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262