Healthcare Research Project: A trial of acceptance and commitment therapy for people with MND (COMMEND)
“I was told I might have a year left, or I might have three. It made me think about the grandchildren and not seeing them grow up. So much was going through my head and I got really depressed.” Person living with MND.
62% of people diagnosed with MND experience anxiety or depression, yet there is little guidance on how to manage these distressing mental health issues in MND.
As a result, in collaboration with the National Institute for Health Research (NIHR) we are supporting a five-year research study led by Dr Rebecca Gould of University College London. This study will provide specialist counselling to over 180 people with MND, to test the effectiveness of a technique known as Acceptance and Commitment Therapy (ACT). ACT draws on mindfulness and cognitive behavioural therapy to help people deal with difficult thoughts and feelings and has been shown to help combat several chronic physical and mental health conditions.
This research aims to show that ACT has a significant impact on the psychological wellbeing of people living with MND. It will also provide evidence-based guidance to the NHS to prove that this therapy is worth rolling out across their services.
We are funding the therapy costs of this project, which will cost us £80,000, with the NIHR funding the main costs of the trial.