Help children and young people affected by MND take part in normal childhood activities

The impact of a parent or grandparent being diagnosed with MND can be immense for a child as family life is turned upside down.  Seeing someone they love deteriorate can be frightening.  Younger children may not understand why the person is no longer able to read them a bedtime story; older children may take on a caring role.  Pressure on family finances may mean missing out on special events and activities.

Our young person’s grants, of up to £250, provide an opportunity for children and young people to have a break and take part in normal childhood activities – providing a bit of light in what can be very dark times for children and their families.


“Daddy wanted to take us to Oman because he used to work there, and the Association gave me a grant so I could swim with a dolphin with my mummy and daddy. Doing this special thing with my daddy was very fun and I will remember it forever.

“The grant helped to cheer me and my daddy up because MND is tough for me to understand. We have lots of photographs and when I look at them, they make me feel happy.

“Thank you very much for helping me.”

Eight-year-old Sophia, whose dad Alan is living with MND.


Get in touch

Contact us to find out more about our Young Person’s Grants and how your donation could make a difference.

For further information and support contact our MND Connect helpline

mndconnect 0808 802 6262